Amgen Requires Patients in Repatha Copay Program To Surrender Their Privacy

http://cardiobrief.org/2015/10/22/amgen-requires-patients-in-repatha-copay-program-to-surrender-their-privacy/

        Asked to comment, Harlan Krumholz (Yale University) said
        that "Privacy in medicine, despite the protections of HIPAA, is
        falling the way of the house call. The question is whether
        people know that by participating in this program that their
        personal health information may be released to a third party- or
        whether most people do not notice this language."  Lauren
        Weinstein is a technology expert who has long been interested
        in privacy issues. He has consulted for Google and is the
        creator of the Privacy Forum. He offered the following comment:
        "Amgen's required authorization agreement is astoundingly broad,
        especially the bizarre statement that 'There is no guarantee
        that my personal health information received by Amgen from a
        Health Care Provider might not be released to a third party.'
        What does this even mean? Are they planning to give away your
        medical info? Sell it? To whom?  Under what conditions? What
        about the privacy policies -- if any -- of those third parties?
        Or is Amgen trying to cover themselves in case of accidental
        release? On its face, it sounds like, 'if you don't have the
        money to pay our full inflated prices, you will never have
        medical privacy again!'"

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--Lauren--
Lauren Weinstein ([email protected]): http://www.vortex.com/lauren 
Founder:
 - Network Neutrality Squad: http://www.nnsquad.org 
 - PRIVACY Forum: http://www.vortex.com/privacy-info
Co-Founder: People For Internet Responsibility: http://www.pfir.org/pfir-info
Member: ACM Committee on Computers and Public Policy
Lauren's Blog: http://lauren.vortex.com
Google+: http://google.com/+LaurenWeinstein 
Twitter: http://twitter.com/laurenweinstein
Tel: +1 (818) 225-2800 / Skype: vortex.com
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