Amgen Requires Patients in Repatha Copay Program To Surrender Their Privacy
http://cardiobrief.org/2015/10/22/amgen-requires-patients-in-repatha-copay-program-to-surrender-their-privacy/ Asked to comment, Harlan Krumholz (Yale University) said that "Privacy in medicine, despite the protections of HIPAA, is falling the way of the house call. The question is whether people know that by participating in this program that their personal health information may be released to a third party- or whether most people do not notice this language." Lauren Weinstein is a technology expert who has long been interested in privacy issues. He has consulted for Google and is the creator of the Privacy Forum. He offered the following comment: "Amgen's required authorization agreement is astoundingly broad, especially the bizarre statement that 'There is no guarantee that my personal health information received by Amgen from a Health Care Provider might not be released to a third party.' What does this even mean? Are they planning to give away your medical info? Sell it? To whom? Under what conditions? What about the privacy policies -- if any -- of those third parties? Or is Amgen trying to cover themselves in case of accidental release? On its face, it sounds like, 'if you don't have the money to pay our full inflated prices, you will never have medical privacy again!'" - - - --Lauren-- Lauren Weinstein ([email protected]): http://www.vortex.com/lauren Founder: - Network Neutrality Squad: http://www.nnsquad.org - PRIVACY Forum: http://www.vortex.com/privacy-info Co-Founder: People For Internet Responsibility: http://www.pfir.org/pfir-info Member: ACM Committee on Computers and Public Policy Lauren's Blog: http://lauren.vortex.com Google+: http://google.com/+LaurenWeinstein Twitter: http://twitter.com/laurenweinstein Tel: +1 (818) 225-2800 / Skype: vortex.com _______________________________________________ pfir mailing list http://lists.pfir.org/mailman/listinfo/pfir
