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My pituitary issue and story
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From:
![]() ![]() Marty8582
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Hello everyone!
It is a pleasure to become such an active group and thank you Minnie for asking me to join!
My story begins with an empty sella syndrome diagnosis made in early 2001. Soon thereafter, I was also told that my MRI results were a concern because of something found from the MRI that could be an "early onset of Alzheimers!" What a nightmare for a 47 year old! We sought medical advice locally, then UCLA, then Schripps Medical and then Mayo Clinic finally in May 2003 to finally be put us at "ease" that it wasn't "Alzheimers".
However, I still have many issues with short term memory loss that has been an issue for nearly 6 years. In May 2003 I was diagnosed with chronic fatigue syndrome, deviated septum, "partial" empty sella syndrome, sleep disorder (later found to be sleep apnea in June 2003). Had two surgeries for pre-cancerous tissue being removed on my stomach in May and June of 2003. Had deviated septum surgery also to remove a bone spur behind the nostrils that were problematic for me to get sufficient oxygen flow. That surgery was done in November 2003 and has been successful!! I also sleep nightly with CPAP for the sleep apnea problem. I have been disoriented, forgetful to the point I wasn't sure which lane I should go into while driving well over a year ago and prior to that where I was going, why I was driving and where I was for a period of a few moments. I can no longer drive due to those issues and luckily never had any traffic accidents! I still experience headaches, blurred vision at times, pain behind my eyes, pressure in my head, extreme weakness, exhaustion, I want to sleep alot, sometimes shock like feelings/like a short circuiting feeling within my body. Once had double vision for a short period of time. I sometimes lack focus and attention span to complete projects (even small ones) successfully. Have also had ringing in ears on occasion. Anyone out there with empty sella syndrome please contact me as am anxious to connect to compare situation and understand what is ahead of us. Any known sites to gain information on clinical trials as well would be appreciated. Please contact. Thank you!! |
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