Re: acromegaly

[Pituitary Chat]

New Message on Pituitary Chat acromegaly Reply   Recommend Message 2 in Discussion From: Chris_Wenninger HI Gramafay – it does sound like you are really out there on your own.  Is there anyway that insurance will cover a trip to a pituitary center for a complete workup?  How long have you tested positive for acromegaly.  Normally people can have the disease for years before it is correctly diagnosed.  Was your MRI done with and without contrast?  If you are dealing with doctors that are not familiar with this disease you are not getting the care that you need.<o:p></o:p> <o:p> </o:p> At this point locating and removing the tumor is the only chance you have of a cure.  The Sandostatin LAR does not get rid of the tumor.  Have the doctors checked for other locations for the tumor.  I remember reading that it can grow in different locations.  If that is the case it is imperative that they find it.  If you have the financial ability please get to a center.  <o:p></o:p> <o:p> </o:p> This group is a great support – and please continue to ask questions.  This is a scary disease but it is treatable.<o:p></o:p> <o:p> </o:p> Take care – Chris – Ogy’s Mom<o:p></o:p> View other groups in this category. Also on MSN: Start Chatting | Listen to Music | House & Home | Try Online Dating | Daily Horoscopes To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. Need help? If you've forgotten your password, please go to Passport Member Services. For other questions or feedback, go to our Contact Us page. If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. Remove my e-mail address from Pituitary Chat.