I've experienced the same thing. I was diagnosed with a 3 cm prolactinoma a little over a year ago (right before Christmas '03). I started of on Bromocriptine which was terrible (it made me wake up every morning sick to my stomach and sometimes unable to move, groggy and spaced out all day, etc.), and also didn't lower my prolactin. My endocrinoligist switched me to Dostinex about 9 months ago, and while it's worlds better than the Bromocriptine, I go through those same ups and downs you described. For a while everything is fine and I think, wow, great, maybe I've finally adjusted, and then I get so tired and lethargic, sometimes for a day or two, sometimes longer. I've found that excercise, and going off the low-carb diet I was using to lose my prolactin-induced weight gain (screw you Atkins!) help a lot. But there still doesn't seem to be any controlling or predicting it. It's hard because I'm only 22, I work, I go to school, I try to go out and have a good time, but it's hard when I have these bouts where I feel like it's affecting the quality of my life. And when I tell my doctors that there are mornings that I can't function without having gotten, for some bizarre reason, exactly 9 and 1/2 hours of sleep they just tell me I should get 9 and 1/2 hours of sleep. Which is not always an option. So, I don't have any answers for you or for myself, but yes, I know exactly what you mean, and if I find any answers I'll keep in touch. |
