Hi Judy, I'm going through the same thing. Mine returned after a bit over
one year after the first surgery. I'm at the same point as you right
now....surgery, radiation or what?
Mine is causing cushing's disease for the second time.
I'm confused, mad that this returned and mad at all this uncertainty that
doctors have had a hard time figuring things out this time, my cushing's is
cyclic this time around which made it harder to clearly identify, of course I
knew it since I first felt the symptoms returning....except doctors didn't
believe me until recently and finally things are getting done. But until NOW
that other hormones other than the cortisol and ACTH are high...do things need
to get bad before somebody listens to our symptoms?
I'm glad that finally things are moving towards the "right" direction but
it's frustrating that things had to get bad enough for my opinion to be
heard.
I know what you mean about not knowing what the right choice is between
surgery or gamma....I've been thinking about the same thing. I guess I'm just
scared of doing a second surgery because the neurosurgeon here did not seem to
optimistic of the outcome...neither is my endocrinologist. But I will be
referred to Dr. Laws in Virginia or another neuro in Massachusetts for a second
surgical opinion.
Jessica | 