In 1983 I went to UCSF Endocrinology clinic and with the first appt and ordered blood test they found my micro-prolatinoma. But due to financial reasons I had to have surgery through the county that I lived in. At that time at UCSF there was world known Neurosurgeon, Dr. Charles Wilson. He actually is one of the pioneers in the development of Transpho.... surgery, I never remember the word. I had my surgery, but continued to see Dr. Paul Fitzgerald an Endocrinologist at UCSF. I attended Pituitary Group meetings at UCSF and a PNA meeting and learned that UCSF automatically gives you radiation therapy after surgery. Thank goodness that I went elsewhere, cause that was never mentioned. For the most part these tumors are benign and slow growing, and even then Bromocriptine had been successful in shrinking them. I did not have radiation therapy ever and would not if given the choice. This is a personal individual choice, but you need to know that it is a choice. So many patients acted like sheep and just went along with it not knowing that it was a choice. Unfortunately at one of these meetintgs I met someone that the radiation was eating her pituitary gland. My feeling is that you should ask if radiation is a choice. And then you should make the decision to have it or not. Another thing that I found out after my surgery. I woke up an found an incision on my thigh where they removed fatty tissue to rebuild the sinuses. No one had ever mentioned that they would need to do that and that there would be an incision. I mean it makes sense after you think about it, but a little notice would have been nice. At UCSF the incision was made on the abdomen....but remember that was the early '80s, so it may be different. Now with all that said, I still highly recommend and use UCSF. I like there Screening Clinic too. |