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New Member - Sally, worried mom

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From: MinnieChat

 
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Sent: 2006-06-13 06:40:13
 
 

I have a 8 month baby boy (THOMAS)who spent the first month of his life in the ICU and was diagnosed Panhypopit with Septo Optic Dysplasia, he is on Cortisol and Thyroxine and we are now waiting for GH. His sugar readings have been wild lately and his developement in length very slow. I would love to hear from people in simular situations that have any information to help me. I have a wonderful Doctor but feel the need to find more out and what to expect along the way to prepare me. 

Sally


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