Do I have recurrence of acromegaly?

[Acro1974]

New Message on Pituitary Chat Do I have recurrence of acromegaly? Reply   Reply to Sender   Recommend Message 1 in Discussion From: Acro1974   Last year I had 2 surgeries for acromegaly. Last surgery was done by Dr. Jho and seemed curative. My IGF-1 level went down to 260 and GH level during glucose suppression test went down as low as 0.3. 6 month ago I participated in acromegaly research in Columbia university. I got letter from Dr. Freda with results. Here it is:   IGF-I: 395 ng/ml (normal 115-307) Glucose tolerance test for growth hormone suppression: Time Growth Hormone 0             0.86 ng/ml 60 mins. 0.49 ng/ml 90 mins. 0.46 ng/ml 120 mins. 0.46 ng/ml The results of your testing indicate that your IGF-I level is a bit above normal. Your GH level was also slightly higher than normal. Most people in remission from acromegaly will have a GH less than 0.3 ng/ml with our GH assay. Your testing overall therefore is suspicious for early recurrence of acromegaly. I had IGF-1 test repeated in June in Cleveland Clinic, IGF-1 was 280 (normal 115-350). In August I had my results rechecked in Columbia and I also participated in research at Mass General. IGF-1 at Columbia: 402 (normal 115-307). IGF-1 at Mass General was 300 (reference range 114-492). Week ago I had IGF-1 measured at Cleveland Clinic, IGF-1 was 330 (normal 115-350). My endocrinologist told me that I have active acromegaly. He mentioned he noticed some abnormalities on MRI. He told me that in order to verify it 100 % he wants to start me on sandostatin LAR. Endocrinologist told that if my IGF-1 will respond to medication it  will prove that I have an active acromegaly. Any opinions about it? View other groups in this category. Also on MSN: Start Chatting | Listen to Music | House & Home | Try Online Dating | Daily Horoscopes To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. Need help? If you've forgotten your password, please go to Passport Member Services. For other questions or feedback, go to our Contact Us page. If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. Remove my e-mail address from Pituitary Chat.