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New Message on Pituitary Chat

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From: liltrubin
Message 2 in Discussion



In a message dated 3/1/2007 7:35:26 P.M. US Mountain Standard Time, 
[EMAIL PROTECTED] writes:
kcfighter


Dear  kcfighter:
 
Either way there are no guarantees. Everyone's tumor is different and the 
only way to determine risk of surgery is to talk to a Neurosurgeon that 
specializes in Pit tumors to determine size, location and current condition of 
the gland. What the surgeon says can say a lot. 
 
As far as medications go, there are program through the manufactures where 
you can get medication at a discount or near free. 
 
There are a lot more things to consider other then other peoples 
experience. Of course other's experiences are going to play a big role when you 
make your decision but you really may want to know the where's and size not to 
mention what the neurologist feels s/he can do. They are the one's who really 
know if your husbands tumor is something they have had experience with. Someone 
may do really well with a prolactinoma removal and another person not do as 
well 
but the size and location may have been the determining factor, you never know. 
Also, I am currently doing research for my dissertation which happens to be on 
Quality of Life and Pit tumors, I just read a peer review study regarding 
prolactinoma's not necessarily needing medication for life. I have read other 
studies where the blanket treatment plans for the different type of tumors is 
going out the door and tumors are being treated as individualized as their 
carriers-:) So treatment are changing and developing-:) 
 
I am sure you are going through an entire gamut of emotions that I cannot 
begin to understand only because I am the one who has the tumor and it is 
different for our partners who have to sit by and go through what you are going 
through. I cannot even imagine what you are going through. I am sure it would 
be 
very difficult if it were my husband or my son. I would most likely feel 
completely helpless.
 
HUGS,
Tina



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