----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: PTResearcher2 Message 2 in Discussion Hi Tara, Did you receive your results from the cardiologist & endo? Your experiences sound somewhat familiar to mine, although I have not had surgery yet. I also went into adrenal crisis post a laparoscopy for endo and was constantly nauseated/vomiting. I also had a lot of heart problems (I had all the neverending tests, too) and was ultimately diagnosed with P.O.T.S., Autonomic Nervous System Imbalance (inability to handle stress - "fight or flight" hormones), borderline bradycardia, arrythmias, AV block, and most recently, a heart murmur. I pass out frequently and suddenly with stress or when my body just decides to. I also have the dizziness, low bp, low pulse, and when I have an "episode," I become very weak, very fatigued, very low pulse (30s usually), with fever & chills...and I pass out. My body simply cannot handle stress. I have also been told that I have a rathke's cleft cyst, as well as a tumor. I have Cushing's disease. I have been "watching and waiting" since the tumor was discovered 5 years ago. I am hoping to have surgery soon. I am sorry that you have gone through so many surgeries. I am glad that your endo and cardio are being thorough with your work-up. As for your dizzy spells, I think that your heart problems are probably causing the dizziness. It can also be caused by hormonal imbalance. I do not know why the cyst recurs so frequently. Have they tested the tumor for hormone secretion? It sounds like your surgeons have never been successful in resecting all of the cyst. Any remaining cyst/tumor can grow and apparently, grow rapidly, in your case. I am sorry that you have undergone so many procedures without success. As for Hopkins, I highly recommend the hospital, but I have never seen any endos there. My Daddy had liver surgery there last year. He received very good care. I consulted the neurosurgeon there, Dr. Brem, back in 2002 when I was first diagnosed with the tumor, and he was not the right surgeon for my care. I may be heading to Hopkins soon for a consult for parathyroid disease/parathyroidectomy. I would recommend that you at least get a second opinion from an endo @ Hopkins. Hopkins is actually fairly cheap with great quality when it comes down to the cost of your medical care there. I hope you receive your answers soon. You're in my prayers. Take care. Meri ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
