----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: VibrantHelen Message 3 in Discussion Dear Marcia, Thanks for your response. It makes me feel better to know I'm not the only person in the world with this awful problem. I too was just put on levoxyl. Mind telling me your dose? My TSH is 0.175 which is very low. My dose is 125mcg of levoxyl. I just started it 10 days ago. I am extremely literate about lyme disease and the many other tickborne diseases one can get---even with one bite many tickborne diseases can be transmitted. Chronic infection is one of the reasons we have pituitary insufficiancy. I was infected in 1987 but not diagnosed with lyme disease until 1993 and by then I was severely ill with especially neurological symptoms. I had a large bullseye rash on my then slender thigh but knew nothing about this monster of a disease then. I quickly had to learn because our then 9 year old daughter became gravely ill and I fought 24/7 for many months until I found the doctor that saved her life. I had symptoms but was too worried about our daughter to pay much attention to myself. My husband and other daughter also got lyme disease and we all needed IV antibiotic treatment. I remain the sickest and pray my husband and daughters do not ever get as ill as I have been. If caught early, and immediately put on oral antibiotic treatment, the cure rate is high but being dx much later into the disease can become chronic and we only hope for a remission. Since this is not a lyme forum I'll not go on but it can be an extremely debilitating disease that can affect any system in the body including psychological problems. After my hysterectomy (total) the pituitary should "kick in" and balance our hormones (the ones the pituitary especially controls). My pituitary is not doing that from chronic long term infection. I truly hope with the proper HRT, perhaps my profuse sweating settles down. My estrogen is so low it barely exists. Helen To: [email protected] From: [EMAIL PROTECTED] Subject: Re: pituitary insufficiancy?? I'm NEW!! Help!! 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I'm NEW!! Help!! Reply Reply to Sender Recommend Message 2 in Discussion From: Marcia Hello Helen. I'm sorry to hear you are having so many problems! Helen, I have some of the same levels that you do. I cannot stand heat! I keep the thermostat at about 68. If it rises above 69, I am sweating! In the summertime, the air conditioning is running constantly! And I will probably never wear a warm sweater again. One difference for me, is that I take Levoxyl. I do not have any side effects, and it works great! Without it, I'd be sleeping during meetings, and falling asleep at the wheel! My advice, is to always have a fan available, and ask your family members to wear sweaters if they are cold. It is much easier to put clothes on, that to take them off! And, take walks on cool days. Exercise really makes me feel better. Helen, how is it that you were diagnosed with lyme disease? And, what do you know about a connection between Lyme and Pituitary disorders? Sincerely, Marcia -----Original Message----- From: VibrantHelen <[EMAIL PROTECTED]> To: Pituitary Chat <[email protected]> Sent: Sun, 25 Nov 2007 9:23 pm Subject: pituitary insufficiancy?? I'm NEW!! Help!! ----------------------------------------------------------- New Message on Pituitary Chat ----------------------------------------------------------- From: VibrantHelen Message 1 in Discussion Hi All, SO glad I found this group. I have chronic late stage lyme disease and other tickborne diseases. One is babesiosis which causes sweats and fever. I developed those symptoms some months after my total hysterectomy (BIG mistake). O was an OR RN before I got really ill. The babesiosis has been treated very aggressively but it can be chronic. The main symptom that is driving me crazy is profuse sweating esp face etc. At ti1mes I have a low grade fever but the sweating is out of control. I can't even mop half my kitchen floor in a cool room or I sweat to death and need to sit or lay to cool off. Now everybody thinks it's from an endocrine disorder. My estrogen is almost nonexistent and my TSH is extremely low even being on 90 of armour thyroid. This has been going on over 5 years. I am losing my mind. I was very ill for over 4 years after I relapsed after my surgery and not until they discovered this strain of babesiosis did I even begin to improve at all--I was bedridden. I used to see a great endocrinologist but she came to my lyme doctors office every 2 months from Kansas because so many late stage lyme patients have problems with pituitary. So I didn't find another endo until Sept who uses human growth hormone which I too desperately need and was on with the other endo. I do not like this endo who I looked for so long because she uses human growth hormone. She is abrupt and hardly looked at me. She put me on levoxyl--125mcg and estratest 1mg. I've been on a week and feel no different and she can't see me until early Feb. WAY too long. I need to have my levels checked much sooner than that. OK, my TSH is 0.175 and the range is0.350--5.500. My estogen is <7 and the range is 19--528. I'm so down because I cannot stand sweating all the time. ANY advice--help or please e-mail me of anybody knows a good endo who "gets" pituitary problems in Phila, NY. I love in West Windsor NJ in between Trenton and Princeton. Thankyou! Helen ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? 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