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New Message on Pituitary Chat

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From: darlinge
Message 1 in Discussion

I have wrote in several times explaining what a large and difficult tumor my 
husband had and how it has changed our family's life.  I then again have wrote 
about discovering that my son (4 years) has elevated prolactin levels and how 
the doctors have been whatching for any signs of a possible tumor.  Well once 
again I am worried.  My 7 year old recently under went testing to see if his 
prolactin levels were elevated.  He has been experiancing terrible headaces and 
the results came back high.  The endro.  is unsure since there is not alot of 
info out there about children with high prolactin levels they are now 
concidering putting both of my children on dostinex.  Although my husband had 
no side effects from the dostinex (even when taking 10x a week) I am worried 
about the children.  I have read several stories on here about people with 
terrible side effects, and then there is the heart valve problems.  I cannot 
say for sure whether or not the doctors will recommend the children to start 
dostinex, but I am very concerned if so what will be the long term effects.  I 
know that I have to do what is in the best interest of my children but I would 
like to have as much info on the subject as possible.  If ANYONE has any info 
on this please let me know.  Thanks to all who answer this in advance.

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