----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: nedaTN Message 3 in Discussion The only medication change in at least the last 6 mths is the increase from 20mg to 30mg of somavert. And it's only with the increase that he's had these severe headaches. An occassional headache maybe but not these all day every day things. Also there is no tumor remaining that can be seen on an MRI. The latest one was just done in January. They also removed his pituitary gland itself, something funky about the normal cells behaving abnormally. If I remember and am explaining this correctly his normal cells were telling themselves to release more and more GH. I may be explaining that badly. The dr called it Neurogenic Acromegaly. I think I did a better job explaining it in one of our older posts. His endo is awesome and really takes everything into consideration with Bill. He's the one when we mentioned the Diahrea he was like "This is not acceptable. We have to try and figure out the cause and what we can do about it." I feel confident he will help us uncover and deal with these headaches. It's just frustrating because 2 months ago his blood test for thryoid cancer markers came back elevated and he had another neck ultrasound and they repeated the blood work last teusday so we are also waiting on that. Sometimes it seems like we climb one hurdle to smack straight into another one. The endo said the elevated marker might had been influenced by being off the somavert and having elevated growth hormone levels and IGF1 levels for a month so he wanted to retest and do the ultrasound before doing anything else. Annetta and Bill ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
