----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: liltrubin Message 2 in Discussion I would guess your surgeon would be the one who would determine if your tumor should come out. I was seeing one for close to five years who would not take out my tumor. I went from little disability and fully function to daily migraines, vertigo, loss of vision to the extent where I could not drive etc. and my endo agreed with that surgeon that my symptoms had NOTHING to do with the tumor and it should not come out. I consulted another surgeon who did my surgery and I am about 85% better!!!!!! I would get a second option from a different surgeon. HUGS, Tina On Mon, Apr 7, 2008 at 10:37 PM, CUSHIE2X <[EMAIL PROTECTED]> wrote: New Message on Pituitary Chat Confusing Lab Results Reply Reply to Sender Recommend Message 1 in Discussion From: CUSHIE2X Hi! I previously had cushings disease caused by pituitary tumor. It took approximately 8 years to diagnose. Surgery was done in September of 2001. I started to develop the symptoms again about 6-8 months after the surgery. MRIs have since shown that I now have 2 tumors on my pituitary. Little change in the size - both are micros. Anyway, my cortisol level has been elevated on only 3 of 8 tests, including saliva, urine, and blood. The salivary cortisol test is the one that usually catches the elevation. 24 hour urine collection has only caught it once. My endocrinologists (yes plural) believe that I do have cushings again because my ACTH level remains the same day or night. However, surgery cannot be performed (or any other treatment for that matter) until cortisol levels are high! I wonder if what is considered a "normal" level is actually too high for my system. Or perhaps the ACTH elevation indicates something else or something the drs are missing. Has anyone else experienced this or something similar? I am in need of guidance. Any help would be greatly appreciated! I am at my wits' end. This has been going for years and years now. View other groups in this category. To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. Need help? If you've forgotten your password, please go to Passport Member Services. For other questions or feedback, go to our Contact Us page. If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. Remove my e-mail address from Pituitary Chat. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
