----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: Marcia Message 6 in Discussion Hello! I wanted to tell you that I had some of the same symptoms that you had in the beginning. I had a non-functioning 3.1 cm macroadenoma. I had Prolactin levels about the same as yours. I stopped getting my period at age 38, and, I had terrible headaches from time to time. Also, my cortisol was low. I had surgery in 2003. I've been doing quite well ever since, only having to take thyroid meds. I do not tolerate GH well, and I decided against HRT for the lack of female hormones. (too many negative side effects) You need a good endo, and a good surgeon. I'd get two or even three opinions. Your tumor is not as large as mine was, but, hopefully, you've caught it early, and you can stop the damage from getting any worse! I'm wondering why you do not want to go to the Cleveland Clinic for treatment? Please let me know if you have any more questions. I'll be happy to help if I can. -----Original Message----- From: boot2a <[EMAIL PROTECTED]> To: Pituitary Chat <[email protected]> Sent: Tue, 20 May 2008 10:53 pm Subject: Re: taking a poll ----------------------------------------------------------- New Message on Pituitary Chat ----------------------------------------------------------- From: boot2a Message 4 in Discussion Thank you everyone for feedback...i was newly diagnosed in November...cortisol levels were low...2.8...they preformed a quick stim test in which i passed.-28..so they said 'false positive'..., prolactin slightly high at the time, 29...Girl hormones OK, GH OK, Thyroid was within 'normal' limits...no new panels since Nov 2007, but i went through a sudden menopause literally overnight.... started HRT, then had to quit within a month because i started producing female hormones all by myself again..so, yeah, i think i'm messed up...i have been fighting with Endo to do new panels....OBGYN took thyroid and prolactin level blood work today...i don't have a PCP that knows which end is up...trying to change endos is HARD to do when i am tied into OSU Medical Clinic....i don't want to go to Cleveland Clinic, but might have to???? Pinzone was my original endo, but then they passed me off onto someone else...so next visit, i told my current endo to have him present///BTW, no appt has been scheduled!!!!!!yet!!!!! and it's almost June (don't worry, i am making this happen)...but,i think that is wierd that they would want to wait a year on a newly diagnosed person.....even if i have been diagnosed with a 'non-functional' adenoma...the thing is almost a macroadenoma at .9cm...so i need all of your expertise in this...i also refer to the PNA website, but the moderator there is like Hitler...so i just use it for info only. Bought their dumb book for 60.00 bucks in which all the information in it is free on the net...live and learn, huh?? ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED] Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
