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New Message on Pituitary Chat

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From: Willard1H
Message 5 in Discussion

Anita, Anita,   I love ya, but I think you're having a bad day.   Williard, I 
don't get your comparison. Novak's brain tumor and our pituitary tumors. Yours 
was macro...large.  But the majority of pituitary tumors are micro....very 
small.  So they don't invade or have contact with the parts of the brain for 
function, thought, etc.  What do you mean, COMPARISON? A pituitary tumor IS a 
brain tumor. Period. Naturally, it is a subset of maybe 100-plus different 
kinds of BT's, and we do have differences. Micro, macro. Benign, malignant. Why 
separate ourselves into an exclusive club?   According to the Pituitary Network 
Association, the pit gland and brain connect. "The pituitary hangs from the 
hypothalamus, a part of the brain located immediately above it, by a 
thread-like stalk."    I hope you're not advocating that we exclude Pit Tumors 
form the world of Brain Tumors at large. We're present and highly visible with 
the American Brain Tumor Association and the National BTA, and many other 
national organizations. It would be the height of foolishness to divorce 
ourselves from major groups, merely because of our differences. I can empathize 
with a singer, athlete or actor who is struggling with a brain tumor, whether 
it be Pituitary, Glioma, Meningioma or Schwannoma.  The type of tumor that 
Novak had is easier to access, so a biopsy would help before surgery. But I 
don't think that we should clump Pit tumors with Brain tumors such as Novak 
has.  Our pit tumors do not normally lead to his type of brain tumor. You're 
one up on me -- I still can't find an article that details what kind of brain 
tumor Novak has. As we're seen on the ABTA and NBTA sites, a Pituitary Tumor 
certainly could qualify, since medical science has already "clumped" them 
together. What type does the columnist have? How big? Where is it located? Do 
you know something the media do not, or are you merely speculating?   This 
forum is Pituitary Chat........I'm sure that there are probably Brain tumor 
forums. Anita, society and medicine is so poorly informed about Pituitary 
Tumors, I count it a blessing that we are rightly seated at the Brain Tumor 
table. I can sit down to lunch with my brain tumor support group, and relate to 
many of their problems. Other aspects of their illnesses are totally alien to 
me, but they're still people with problems similar to mine.    It's a mistake 
to focus so narrowly on Pit Tumors that we miss the big picture. April posted a 
message thread Prolactinoma and the effect it has on your mood emotions. Her 
doctor claimed "there is no link between the prolactinoma and your emotional 
state and your inner stress!"   I referred her to the ABTA's discussion of 
Mental and/or Personality Changes, relating to ALL kinds of Brain Tumors. I 
hope she visited her doctor, armed with that information, and afterwards 
received more appropriate treatment.    Let's not set ourselves up as a gated 
community, away from the larger Brain Tumor world. (If I were flying to China 
for the Olympics, you could bet I'd attend more than just the Beach Volleyball 
event!) Think bigger.   Willard  

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