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New Message on Pituitary Chat

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From: hurricaney1
Message 1 in Discussion

Hi, this is my first post.  
I was diagnosed with Acromegaly this past April.  I have a history of eating 
disorders but have been asymptomatic for almost a year.  In spring of 2007 I 
began to notice strange symptoms.  I do not know if that is when they began or 
if that is when I became observant of them.  It is hard to determine given the 
fact that I blamed every health issue on bulimia.  Last winter, I became more 
concerned regarding the symptoms and scheduled a pcp appt.  She prescribed a 
sleep study; wikipedia prescribed an endocrinologist, haha.  I made an 
appointment and saw him on April 16.  Everyone was skeptical because I do not 
have obvious features of either Cushings or Acromegaly.  My symptoms seem to 
resemble both.  The excessive sweating was the initial flag for me.  Regardless 
of his skepticism, he ordered the right tests and it was found.  I had more 
blood tests and mris and surgery was done on July 15.  The surgeon targeted a 
cystic lesion on my posterior pituitary and it was removed.  The surgery was 
deemed unsuccessful following post op blood tests.  I have a question that I 
would appreciate feedback on.  Here is the back story.  I developed diabetes 
insipidus while in the hospital.  I was sent home with ddavp spray which I 
never had a chance to take.  A day after I was discharged I developed severe 
hyponatremia, which was a triphasic reaction to the Diabetes Insipidus.  I went 
back to the hospital for a week.  The problem is that all of this affected my 
appetite severely - non eating disorder related.  The hyponatremia caused 
nausea and up to this point I am bearly eating half of what I need.  On August 
8 I had the glucose test.  This past tuesday, I went back to my 
endocrinologist.  He was confused by my high Gh levels but apparently low Igf1 
levels, which are unusual he said and seem to be flawed.  He sent me back 
yesterday to have a repeat glucose test, presuming a mistake was made by the 
lab.  I am now discovering that malnutrition has an effect, a retardation 
effect, on Igf1.  Has anyone else found this to be the case?

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