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New Message on Pituitary Chat

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From: Willard1H
Message 6 in Discussion

Hi, Ashley (and everyone),

We're hoping you have good news from your meeting with the neurosurgeon on Oct. 
15. This being your first, and all, hope you took some notes.

My own Oct. 15 neuro meeting didn't turn out so great. But on the other hand, 
it could have been worse! Lemme just quote bits from an email I sent out to 
some of my closest friends yesterday:
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It was a long, boring visit at University of Alabama - Birmingham's Kirklin 
Clinic,  with very little to report. Dr. Winfield Fisher said he saw some 
slight slimming of my macro prolactinoma tumor in the morning's new MRI images.
 
The neurosurgeon's assistant, who specializes in  interpreting the magnetic 
resonance imaging, had earlier disagreed. She said she  saw no difference from 
the tumor's April 2008 size. Then it had shrunken to 1/3  of its Dec. '07 size.
 
Since I just went to a double dose of the drug Dostinex, we  do expect it to 
dramatically diminish its dimensions. If it hasn't by  April 2009, then we'll 
look into transsphenoidal surgery, which is  unlikely. 

 
According to the _FAQ  file at Pituitary Network Assn_ 
(http://www.pituitary.org/disorders/frequently_asked_questions_about_transsphenoidal_surgery_for_pituitary_adenomas_a_patient_guide.aspx)
 ., "Tumors which secrete high amounts of the hormone prolactin  usually 
respond to medical therapy so that surgery is not  required."

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One friend replied, saying she was sorry I received bad news. BAD!! Could have 
been much worse! It does seem like  six months of pain, deprivation, stress and 
misery, for very little payback. 
 
But on the positive side, my memory is ten times better. I  have fewer moments 
like hot flashes and other medical extremes. I finally got my  bank balance to 
stop hemorrhaging. When my coworkers call on me, I feel like a much more  
capable worker. 

My friends call my activity on Pituitary Chat my "ministry." I tell them my 
message board involvement is going well. It helps me to heal and cope, and at 
the same time to offer aid and comfort to my fellow Pitters.

Willard


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