[QUAD-L] hello again + ?

[Lana Baugh]

Hello again!     We left the list for a number of years. Now We're back and I hope you still allow parents to participate. My son cannot participate fully due to other disabilities. I will try and get him as involved as he is willing too and can (This will be his decision)   My son's name is Gabe and I am Lana.  Gabe is 31 and had his injury 9 years ago. The product of a surgery gone bad. He has a C-5 SCI. He lives with us. But has his own suite and 24-7 attendant care. He comes and goes as he pleases.   We need help-advice on several things.   Gabe had pneumonia this summer for the first time. Hospital acquired pneumonia (HAP) He went in for a simple procedure and ended up in ICU. The question I have for you all is. While this pneumonia was picked up in the hospital, do you have any advice on prevention.(besides stay out of the hospital) This has been the current plan....Gabe is busy and moving, his suite has a HEPA filter and humidifier with eucalyptus oil in it.  A real basic respiratory therapy happens 2 x a day. Anything else?     Bowel motility..... The painful swollen gut. complicated by a partial bowel obstruction. Gabe usually has shakes, smoothies or yogurt. Stuff that's easy on the gut. reduce air whenever possible. However a guys got to eat a burger now and then.  He uses Miralax, Citrucel and uses a biscodyl mini enema (30cc) 2x aday. The gut still grows. Any ideas? ( We have used fleets basic enema, digital stimulation, bycodyl supp, glycerin supp)   Thanks, Lana