Lori
Subject: National Spinal Cord Injury Association Important Survey
From: "NSCIA Newsletter" <[EMAIL PROTECTED]>
Your participation is needed for a national mail survey on SCI,
Physical Activity, Exercise and Secondary Conditions!
On behalf of the NSCIA and our research partner, the National
Rehabilitation Hospital-Center for Health and Disability
Research (NRH-CHDR), I would like to invite individuals
with spinal cord injuries (SCI) to take part in a national
survey on Physical Activity, Exercise, and Secondary Conditions
in People with SCI. The survey is part of a Rehabilitation
Research and Training Center (RRTC) on SCI: Promoting Health
and Preventing Complications through Exercise. This RRTC is
funded by the National Institute on Disability and Rehabilitation
Research (NIDRR) which is a part of the US Department of Education.
As a collaborator, the NSCIA has been involved in the various
research and training activities of this RRTC. We are involved
so we can help people with SCI to maximize the quality of their
lives. We believe that projects like this will help make life
better, easier, and more fun for people with SCI.
Although the literature indicates that there are more than
200,000 people living with SCI in the United States, less
than half report that they exercise or engage in physical
activity. It is unclear if a lack of physical activity or
exercise is associated with increased risks of other
health-related problems, such as heart disease, urinary tract
infections, and bone loss. The purpose of this survey is to
therefore study the relationship between physical activity
and exercise and the health of people with SCI.
If you or someone you know has a spinal cord injury and
is interested in taking part in this survey, please contact
our collaborators at the NRH-CHDR. Please contact:
Matt Kehn
E-mail: [EMAIL PROTECTED]
Phone: (202) 877-1603
If you are eligible, he will send you a consent form and
the survey. You will be asked to fill out this mail survey
once a year over two years. All the information you provide
will remain strictly confidential.
As the Executive Director of NSCIA, I have been impressed with
your responsiveness to such requests in the past. The future
health of people with SCI depends on our growing knowledge. I
know that your contribution to this important research project
will make a difference. Sharing your experiences will help us
better understand how exercise and physical activity can benefit
people with SCI. Without the input of people with SCI, all we
are doing is guessing. With your help, we can learn from the
experts.
Sincerely,
Marcie Roth
Executive Director
NSCIA
National Spinal Cord Injury Association Web Team.

