Re: [QUAD-L] Help....

[~LittleQuad~]

wow i did it for the 1st tie at home! i have been dreading this enormously! it just looks so awful, as i hate any scratch! thanks so much for the note, i must had read it 10Xs! i will try and be on a strict 3 hour regiment, unless needed before...as i can still tell when i need to go...the nurse at hospital said i'd most likely lose it, thank goodness i haven't!! 
so you have a stoma also? where is yours? mine is like 2 inches to right of belly button, and the SP is 2 inches below...temporarily! i don't think i'll have mine a year...i go back in 2 weeks and he mentioned removing it...hope so, it hurts my feelings to see how it rubs my skin and stretches it, my eyes water every time i see it...i must be a vain person....haha

thanks a lot dana!!

 

Dana Miller <[EMAIL PROTECTED]> wrote:

It will be fine! It will produce a lot of mucous at first because part of
your intestine was used and that produced mucous! It "will" bleed, the edge
of the hole is tender right now. I kept a SP in for nearly a "year" before
'trusting' that weird thing in my belly. Make sure you irrigate it!! At
least daily. Do not be gentle about it! Put 60cc's of sterile water inn
the syringe and shove it in! Then pull 30cc's out! When you pull out, do
not pull if you get resistance--the end of the catheter may be against the
wall of your new bladder. Irrigate again. I irrigated at least twice or
until it pulled back clear. It is amazing how much mucous can build up in
24 hours.

Between cathing, cover it with 2 x2's or a 4x4. It will keep the irritation
of clothes down. When you do cath, make sure you get far enough in--the
first few weeks ! of cathing, if my doc did it, I would be flabbergasted as
far in she would put it. The type of cath I use, only about 5-6 inches
sticks out in order to get it all the way in. I really should measure that.
I will let you know what kind of cath I use as those red rubber hospital
kind might as well be a piece of spaghetti! Plus they drain slowly.

Do you still have a SP in? Using that at night gives the hole a chance to
rest and the sides to heal a bit. If the cath will not go in easy, if there
is resistance, take a deep breath and let it out--relax! And keep your
water drinking up! It will help expand the new bladder--altho if you are
cathing only every 4 hours, I would cut back on the water, or just sip it
now and then. If you drink a whole glass it will hit in about an hour and
you will need to cath every 20-30 minutes, if that much, as your bladder
will not be able to hold that much liquid at a time. If your are leaking,
u! p the caths to 3 hrs.

It will take quite a while to get used to it and to the new feelings you
will get. They re-arranged your insides! They will be sore. A picture
will help. Sometimes, no matter what you do, the durn thing will 'not' go
in. Relax for a bit and have someone else try. The angle of the cath will
help. When it goes in the hole have it pointed down a bit towards the new
bladder.

The main thing is to be patient! It "will" work--stay on ditropan or
whatever you use for bladder relaxation. What kind of cath are you using?
The red rubbers are the softest, but because of that it does not have enough
stiffness to get thru the tight times, but will eventually if you lubricate.
I forgot about lubricating--its been so long since I have used it, I forget
about it.

Basically its one of those things that the more you 'fight', the worse it
is. Then suddenly it will go in, and you have no idea what you did! I will be signing off for the day, but be optimistic, it will work and see ya
tomorrow! take care,

Dana and ?
[EMAIL PROTECTED]
----- Original Message -----
From: "~LittleQuad~" <[EMAIL PROTECTED]>
To: "Quad-list post"
Sent: Sunday, January 09, 2005 5:52 PM
Subject: [QUAD-L] Help....


> Hey gang! I've had my surgery and my doctor says it was a success. I'm not
> so convinced! The hole gets clogged up and fluid build-up. It's very sore
> and bleeds when messed with. I can hardly stand to look at it, much less
> cath thru it! My mom tried and she couldn't figure it out. So I'm going to
> try it in a little while. Doc says do it every 4 hours. Ugh, help! Is it
> supposed to do that??? I'm going to get a pic taken of it and send,
> hopefully this week.
> Thanks guys!!
> Amye
>