Re: [QUAD-L] Help....

[Dana Miller]

It does,  I only used it at night.  I'm just a chicken when it comes to some 
things.

I did not wear a halo, but a collar at the begining of my injury.  They took 
exrays every now and then to watch that I was healing ok.  One day after 
such xrays, at switch of shifts, the head nurse comes over to me, as I 
stopped to tell them I was there, and just took the collar off.  I was too 
flabergasted to be mad, but got mad later.  They knew I would procrastenate 
forever.  I thought my head would flop over if the collar was not on--even 
tho it was so loose it really was not doing anything anyway!

I was also convinced I was going to die when I left rehab too!  Poor people, 
I feel sorry for my nurses and what I put them thru! 
take care,

Dana and ?
[EMAIL PROTECTED]
----- Original Message ----- 
From: "Liz" <[EMAIL PROTECTED]>
To: "Dana Miller" <[EMAIL PROTECTED]>; "Quad-list post" 
<quad-list@eskimo.com>
Sent: Monday, January 10, 2005 9:09 AM
Subject: Re: [QUAD-L] Help....


LOL, sorry I just had to add. My SP tube was taken out in the hospital
before I left.  Nurses and dr. made sure I could cath on my own before
letting me go..........I think, and I'm not a dr, keeping the tube in for 
a
year would defeat the purpose of the augment/mith procedure.

----- Original Message -----
From: "Dana Miller" <[EMAIL PROTECTED]>
To: "Quad-list post" <quad-list@eskimo.com>
Sent: Sunday, January 09, 2005 8:32 PM
Subject: Re: [QUAD-L] Help....

It will be fine!  It will produce a lot of mucous at first because part 
of
your intestine was used and that produced mucous!  It "will" bleed, the
edge
of the hole is tender right now.  I kept a SP in for nearly a "year"
before
'trusting' that weird thing in my belly.  Make sure you irrigate it!!  At
least daily.  Do not be gentle about it!  Put 60cc's of sterile water inn
the syringe and shove it in!  Then pull 30cc's out!  When you pull out, 
do
not pull if you get resistance--the end of the catheter may be against 
the
wall of your new bladder.  Irrigate again.  I irrigated at least twice or
until it pulled back clear.  It is amazing how much mucous can build up 
in
24 hours.

Between cathing, cover it with 2 x2's or a 4x4.  It will keep the
irritation
of clothes down.  When you do cath, make sure you get far enough in--the
first few weeks of cathing, if my doc did it, I would be flabbergasted as
far in she would put it.  The type of cath I use, only about 5-6 inches
sticks out in order to get it all the way in.  I really should measure
that.
I will let you know what kind of cath I use as those red rubber hospital
kind might as well be a piece of spaghetti!  Plus they drain slowly.
Do you still have a SP in?  Using that at night gives the hole a chance 
to
rest and the sides to heal a bit.  If the cath will not go in easy, if
there
is resistance, take a deep breath and let it out--relax!  And keep your
water drinking up!   It will help expand the new bladder--altho if you 
are
cathing only every 4 hours, I would cut back on the water, or just sip it
now and then.  If you drink a whole glass it will hit in about an hour 
and
you will need to cath every 20-30 minutes, if that much, as your bladder
will not be able to hold that much liquid at a time.  If your are 
leaking,
up the caths to 3 hrs.

It will take quite a while to get used to it and to the new feelings you
will get.  They re-arranged your insides!  They will be sore.  A picture
will help.  Sometimes, no matter what you do, the durn thing will 'not' 
go
in.  Relax for a bit and have someone else try.  The angle of the cath
will
help.  When it goes in the hole have it pointed down a bit towards the 
new
bladder.

The main thing is to be patient!  It "will" work--stay on ditropan or
whatever you use for bladder relaxation.  What kind of cath are you 
using?
The red rubbers are the softest, but because of that it does not have
enough
stiffness to get thru the tight times, but will eventually if you
lubricate.
I forgot about lubricating--its been so long since I have used it, I
forget
about it.
Basically its one of those things that the more you 'fight', the worse it
is.  Then suddenly it will go in, and you have no idea what you did!  I
will
be signing off for the day, but be optimistic, it will work and see ya
tomorrow!                                                         take
care,
Dana and ?
[EMAIL PROTECTED]
----- Original Message -----
From: "~LittleQuad~" <[EMAIL PROTECTED]>
To: "Quad-list post" <quad-list@eskimo.com>
Sent: Sunday, January 09, 2005 5:52 PM
Subject: [QUAD-L] Help....
> Hey gang! I've had my surgery and my doctor says it was a success. I'm
not
> so convinced! The hole gets clogged up and fluid build-up. It's very
sore
> and bleeds when messed with. I can hardly stand to look at it, much 
> less
> cath thru it! My mom tried and she couldn't figure it out. So I'm going
to
> try it in a little while. Doc says do it every 4 hours. Ugh, help! Is 
> it
> supposed to do that??? I'm going to get a pic taken of it and send,
> hopefully this week.
> Thanks guys!!
> Amye
>