Re: [QUAD-L] pressure sores

[Dana Miller]

Been there, done that for many, many years.  I could not plan anything in 
advance or even do volunteer work.  Tried everything the doc or anyone knew 
about. Then when my hospital bed was mapped, I learned I "had" to lay flat 
at night and also got a new cushion that the mapping sensors show that 
nothing on my bottom touches anything.  Of course I cannot think of the name 
of it, but a few people on the list have one.  So far after 3-4 months I 
think, my bottom does not even get red, pinkor any other color than its 
supposerd to be.  I think I can breathe a little easier now.
take care,.

Dana and ?
[EMAIL PROTECTED]
----- Original Message ----- 
From: "dillon awe" <[EMAIL PROTECTED]>
To: <quad-list@eskimo.com>
Sent: Tuesday, January 18, 2005 8:31 PM
Subject: [QUAD-L] pressure sores

I have had a terrible time with pressures sores.  Either my skin gets red or 
it breaks open.  My problem with my skin occurs all year long and is 
frustrating not only because of time it takes to heal but also because I 
have had to cancel or postpone many activities I wished and planned to 
participate.


I have looked for work or even to volunteer but am extremely hesitant 
because I know, as has happened frequently in the past,  that I'll either 
get sick or more likely develop a skin area and have to cancel.  I just 
bought a new cushion which was modified for my butt and weight using a 
computer that highlighted my bone prominences but it is not helped very 
much.  I use a ROHO cushion that has four air compartments.  I try to eat 
well and do frequent pressure reliefs.


Has this problem ever stopped from seeking work etc.?


How have any of you dealt with this problem?