That's good news. Everything takes time but seems to be worth it in
the end a lot of the time. Letter writing can get you far. Keep it
up.
Stacy
----- Original Message -----
Sent: Tuesday, March 01, 2005 3:49
PM
Subject: [QUAD-L] BSCIP
There's possibly some good news or so the rumor
has it. I have been informed by the client advocate, Karl, that my
letter stirred up quite a bit of excitement in Tallahassee resulting in the
director of the Brain and Spinal Cord Injury Program and my caseworker having
their chains yanked fairly hard. I do not have any definite details but
it seems a good number of people are taking note hopefully resulting in some
positive changes. The other letters that will follow mine should be salt
in the wound.
I may have found a way around a lot of problems with the
BSCIP. By having them force me to go through a nursing agency they have
increased the funding for my plan by $2000/mo. Unfortunately that is all
going to a nursing agency but there is a silver lining to it.
I
hope everyone has heard about the Consumer Directed Care Program. So far
it has been a pilot study with only 12 people throughout the state. It
does return control to our hands as to who provides our care and will get them
paid. I still do not understand all the ramifications and complications
of this program but it looks like it will be difficult for us as individuals
to manage as the management aspect falls on our shoulders. Here is the
good part. Since they have increased the funding on my program that
funding will be carried over into the Consumer Directed Care Program.
This will give me a substantial increase in the amount of money that I will
have for paying care providers. It may take several months for this to
happen. No one seems to know anything specific at this point. So
far I don't even know if it's going to be a reality.
Here's how it
looks like things could happen for all of us if it's appropriate to your
situation. Get your caseworker to provide your care through a home
health agency. That will increase the amount of money in your treatment
plan substantially. Be sure to have plenty of backup people, as agencies
are extremely unreliable if not deadly. Then call 1-866-232-3733 and ask to be
put on the interested parties list for the CDC Program. They don't call
it the waiting list as Bill explained previously as then they must take action
within 90 days. That's how they dodge that bullet. Please do not
jump into this hastily. I was forced into the situation but hope to come
out of this with more money and control of my own life once again.
As I
call it, the BS Program will not run my life!
Fond wishes to
all,
Loren
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