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While I get some outside help ... sounds like Dan & I are in a similar dilemma.
My husband doesn't "want" to be a nursemaid and he feels used by the system and underappreciated
by me. But he says he'd do it all over again (marry me post-injury). Or maybe he said that on a good day..
LOL.
But, no, he has much more character and his favorite motto is "What doesn't kill us makes us stronger" too.
I'm upset over the fact that I've had more problems since our marriage and it makes me mad! From wounds to
UTIs to bowel problems to pain and agency horsehit. And it's neverending it seems.
I sure don't FEEL stronger putting up with all this crap.
Lori
C4/5 complete
25 yrs post
-------Original Message-------
Date: 03/31/05 07:04:50
Subject: Re: [QUAD-L] re: Slippery slopes to making it personal
I agree with you I enjoy life too.....But it is so unfair to caregivers like my wife, she loves me but we do not qualify for any outside caregivers or nurse help.....she has to work full time plus change my catheters-dress and help shower me-- do bowel routines-- leg range of motion and so on......she always say's she wishes she would die and be free of the endless work and life has no joy... I feel so guilty but I have no option but perhaps a nursing home, So while we live in this condition is it fair to our loved ones ??? Also a few other list members have told me some of their loved ones feel mizerable with this lifestyle too.
Dan
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