Re: [QUAD-L] also, your opinion could help

[David K. Kelmer]

Hi Dana,

 

I keep my bed controls where I can sit up after my morning work-out.  I keep a book within reach so I'll have something to read until my brother gets-up at 7:00 A.M.  He's gone to work by the time my mom gets-up at 8:00 A.M. so I do read in the mornings.

 

With Love,

CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA

Dana Miller <[EMAIL PROTECTED]> wrote:

Just this a.m. my "new" attendant called and said she would be here and
bring something from McDonalds with her. She never showed up. In the past
2-3 weeks I have had 2-3 "new" aides come and go. I have 2 excellent ones
now, but one is going to Florida in june for a week.
Another 'interviewee' called and wanted to change her interview until
Sunday--she forgot her husband was having a colostomy and urostomy
today--what!

People keep telling me I should write a book too. We should flood the
market with therxse books and name names to show how we are "really"
treated! There should be a chapter on good aides too, or something so that
they do not go un-noticed. Maybe a 2 set book--The Bad, and The Good!

Dana
[EMAIL PROTECTED]
----- Original Message -----
From: "Silas Shelburne" <[EMAIL PROTECTED]>
To: "Lori Michaelson" <[EMAIL PROTECTED]>; "Quad"
Sent: Thursday, May 12, 2005 4:32 PM
Subject: Re: [QUAD-L] also, your opinion could help


Oh man!
You wouldn't believe the trouble ive had with nursing and aids, been through
6 in 3 years. One ive got now comes in every morning with alcahol on her
breath even drinks through the day. It doesn't seem to bother her so I
haven't said anything, hell I may not find another nurse. Thats how despert
I am for help. Lol. Thats just the tip of the iceberg that ive been
through with help, im real easy too get along with to. That was the trouble
with one nurse, she wonted to marry me. Lol. When I said no she ran back
to her husband the next week, and quit not long after. Sounds kind of
fishey don't it. Oh ill tell you more later, im going to write a book about
my trials with help. Lol.
Silas
----- Original Message -----
From: Lori Michaelson
To: Quad
Sent: Wednesday! , May 11, 2005 1:35 PM
Subject: Re: [QUAD-L] also, your opinion could help


Believe you me, Stacy, DO consider yourself fortunate!

All us quads have faced the low caliber of character that so many
aides have. They want the job, then they don't. Many are thieves.

My latest (via my MediCARE agency) began about a month ago. At
first I thought she had it all together. NOT! She's dating a guy in jail
and is a single mom to 4 kids under age 11!

In the last 12 days of work here ... she's called in FIVE times with
car trouble.

I just don't know how people like them can survive themselves let
alone have a conscience.

Lori

-------Original Message-------

From: Stacy Harim
Date: 05/11/05 13:04:02
To: Quad; Dana Miller
Subject: Re: [QUAD-L] also, your opinion could help

wow, the experiences you all are going through with aides makes me
sick to my stomach. Makes me realize how lucky I am to have t! he
independence I have. My friend/neighbor is my aide and I mostly just use
her for chores. She does more while I am going to school. When I first got
home from rehab and needed more personal care, my aides were 2 women one in
her 40's and the other early 50's. they bother were very dependable. One
got on my nerves once she got comfortable. She stayed longer than I needed
her just so she could get overtime so she just sat around. That is minimal
compared to what you all are going through. I'm so fortunate that I was
physically able to learn to take care of my personal care.

I think you would definitely benefit from the waiver.

Stacy
----- Original Message -----
From: Dana Miller
To: Quad
Sent: Wednesday, May 11, 2005 1:34 PM
Subject: Re: [QUAD-L] also, your opinion could help


For a long time I was on Medicare only. Then noticed Medicaid began
to pick
up things for 3 months if I happened to be in the hospital. I
started
getting involved in the 'spenddown' just to get my meds paid for.
My
attendant program is paid by the state--but had to wait 4 years for
it. I
had private insurance before that.

It took me a few years to figure out what medicaid was and how to
use the
spenddown. Then my case worker from senior services (a more
politically
correct term, ugh) came to do his yearly review and somehow--I don't
ask--came up with 6 hours a week for homemaker services. They come
3 times
a week for 2 hours. They do cleaning, shopping and laundry. I used
to have
to pay my attendants to do that. Now they can concentrate on my
care.

These people come from agencies and I have gone thru a bunch of
them! The
quality of person they hire is not very good because the pay is low.
The
good ones move on to better things, or are going to school and just
doing
this for side money and experience. Also it! seems just as you find
one you
like the agency changes their schedule, or theyquit. Just this
month, 2
good people quit without notice.

Plus I am needing an attendant and its been slim pickings. One girl
who
really looked good, came for 3 days, then 2 days of excuses then
never came
back. I just hired a new gal,who I'm not sure
if she is running on all cylinders or not. Then there are the ones
who say
they want the job then never show up for training. I have 2
attendants now.
One is going to Florida for a week in June
so need someone to work while she is gone--the new girl said she
would--if
she lasts that long.

And now Medicaid has changed and I have to pay a premium to it every
month
that is higher than my rent. Its not written in stone tho, so still
don't
know what will happen eventually.

Dana
[EMAIL PROTECTED]
----- Original Message -----
From: "Lori Michaelson" <[EMAIL PROTECTED]>
To: "Quad"
Sent: Tuesday, May 10, 2005 6:52 PM
Subject: Re: [QUAD-L] also, your opinion could help


The waiver programs are for those on MediCAID not MediCARE. For
those at,
or near, the poverty level.

Lori

-------Original Message-------

From: [EMAIL PROTECTED]
Date: 05/10/05 16:31:38
To: [EMAIL PROTECTED]; [EMAIL PROTECTED];
[EMAIL PROTECTED]; Quad-List@eskimo.com
Subject: Re: [QUAD-L] also, your opinion could help

I Don't understand this waiver thing-----medicare part A hospital
is free
but If I would want Part B i'd have to pay each month for
it........So for
now I just use my wife's work insurance, as long as she can keep
this job
she hates. Waiver must be for part B if income is very low ??
Dan