I would be more than happy to help with an organization like that! Right
now my state wants to cut all the PCA programs and the republicans think
agencies are the way to go! We got lucky again this year and squecked by
and the program I am on is still there, BUT I have to pay a premium of $179
a month to keep my medicaid! When my social security rises, then my premium
rises. My rent was readjusted but only went down $50, and now with a/c to
pay which is $25, I'm almost back to where I was. I will have no extra to
pay for van repairs, much less insurance and will not be able to pay for my
internet access unless my family helps out. I think my mother would be
willing but would want my father to help to--which is only fair--but my
stepmother thinks my high credit card payment is 'tough luck' and showed no
concern at all. I am going to try and sell some Star Trek and Highlander
collectibles on ebay, but that will only help a little and only if I can at
least get back what I paid for them 10+ years ago. (anyone got some money
to spare for some limited edition gold cards from Star Trek? I'm pretty
sure I have one of everyone that was made, including the anniversary
editions, in mint condition never taken out of their plastic casings except
to see the number out of 10,000 made) I should make a list of what I have.
Both Star Trek and Highlander--have a Watchers DVD that has never been
opened. Would have to look in my drawer to see what else I have.
Well, so much for 'poor ole me', but your org. sounds really active. The
Independant living center here has one or 2 people who go to the rehab
(Health South) place to talk to in-patients, but most live in rural areas or
are from out of state and a lot of times its a "you have to know what
questions to ask" type of place. The guy in charge of potential pca's is
slow as a slug and is of no help what so ever.
take care,
Dana
[EMAIL PROTECTED]
----- Original Message -----
From: "QuadPirate" <[EMAIL PROTECTED]>
To: <[email protected]>; "Lori Michaelson" <[EMAIL PROTECTED]>
Sent: Friday, May 27, 2005 11:00 AM
Subject: Re: [QUAD-L] WE need to take action
Lori,
The organization that I work with and single handedly set me up in my house
does it all.
We actively go to nursing homes around the state and ask people if they want
to go home then start with the paper work show them how to find help which
is usually family or friend but not always and we go to rehab to help them
before they end up in nursing homes.
The problem used to be that their help had to work and wait on their first
check for about 3 months! So now our organization has a fund to pay them
until they get into the system and why it takes 3 months is baffling to all
of us.
We had a meeting not long ago with the people that run alternative waivers
program and brought in the people they are paying so they could see and here
exactly what the problems in the system are and they set them back on their
heels.
There are different services like home modification grants that we also take
care of and we have a section 8 grant to help with rental assistant all in
one location.
it is truly awesome to watch how a person changes when you give their
freedom back and I encourage anyone to go to your local ILC and volunteer it
s worth it.
Mark
-------Original Message-------
From: Lori Michaelson
Date: 05/26/05 20:04:44
To: Quad
Subject: [QUAD-L] WE need to take action
I'm cross-posting from what I sent to the SCIC list that covers
many of the same issues here but here is what I think needs
to happen....
The quad population is so large now and we are all at our wits end trying to
get services.]
Instead of posting all our problems WE REALLY NEED to pull our resources
together
as individuals and do what Barbara posted below!
Organizations (ILCs, Centers for Rights, Projects on medicine, etc) when ya
get
right down to it THEY pretty much just EXIST.
There is no active plan in motion.
We are so tired of trying 100 different organizations to "help" and either
get referred elsewhere or they say "we don't do that."
WE TOO are at the point OF apathy. But we really need TO get a grassroots
effort FOR HELP instead of going through the ~daily & weekly sweat~
of being caregivers and individuals who need HELP!
Lori
C4/5 complete quad, 25 yrs post
Tucson, AZ
Husband David - primary caregiver who is there when no one else is
-------Original Message-------
To: [EMAIL PROTECTED]
Subject: Re: [SCIC] Another problem from Bill and Stem cell from ED
On 26 May 2005, at 8:35, Barbara Lorenz wrote:
I know there is alot of money spent on research, but I wish there was
a foundation for $$ to help the day to day living for SCI.
