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My sister's BP was running all over the place. Highs, Lows and "spikes of highs" for no reason for
well over a year.
Her Dr put her on so many bp drugs over the course of a year or more (as in - "here try these ... run along now").
She knew something was wrong but unsure what exactly. And she had umpteen tests (cardio, etc).
After getting a new Dr (after like 25 yrs!) HE suggested kidney tests. Anyway, she was found to
have fibromuscular dysplasia IN ONE RENAL ARTERY. She had an angioplasty done (balloon put
up into the renal artery to get rid of the blockage) after a RENAL angiogram was done.
Her BP is great now. So far.
Here's her story BEFORE she DID HAVE angioplasty.....
"This was how it went: I'll try to be brief. I had the renal vascular ultrasound the first part of January. The techs told me what they saw when they performed the test on me. However, it took 6 weeks for the surgeon reading the report to have a report written and sent to the cardiologist who requested it. When the cardiologist's office (whom I'd called about 4 or 5 times for the written result) finally said they had it, they recommended I see a different doctor in his office for some kidney tests. By that time I'd had it with that cardiologist. I requested they send the result to me so I could discuss it with my family doctor.
There was more time lost until they sent it to me, and then I had to make an appointment with my family doctor to discuss it with him. He recommended that I see a surgeon at Robt. Packer. That was more time waiting. When I saw the surgeon he gave me all the info and said to call him if I decided to have the renal angiogram done. He said it wasn't an emergency to get it done. I discussed it with my FMD, but again he wanted to wait for the written report from the surgeon at Robt. Packer before he advised me. Then when he got the report he recommended (along with the recommendation of the surgeon) to proceed with the angiogram. An angiogram is the ONLY way they can tell what is really going on in there.
I have agreed to an angiogram. If during the angiogram they find blockage, I want them to correct it while they are in there (angioplasty, stents, whatever the need to do) so they don't have to go back in again later. If there happens to be no blockage, no corrective action is necessary."
Lori
-------Original Message-------
Date: 05/28/05 16:58:36
Subject: Re: [QUAD-L] blood pressure
Have you talked to a cardiologist about it? It can't be good to have it
bouncing around all over the place.
Dana
----- Original Message -----
Sent: Saturday, May 28, 2005 3:52 PM
Subject: Re: [QUAD-L] blood pressure
>I have the same problem Dana. My pressure is really low in the chair but
>shoots through the roof as soon as I get in bed. That's why I don't use
>any medications for my low pressure problems. I used to take ephedrine to
>help with low pressure but no pharmacies around here will fill
>prescriptions for it anymore.
> Eric
>
> Dana Miller wrote:
>
>> My BP has been all over the map the last couple of years. I used to
>> routibnely be 90/60 give or take even 80/50+ was normal. Since I got
>> home from my last skin flap it is not unusual fot me to be 150/98, then
>> get in my chair and it would drop to 90/60 or there abouts. Lately my
>> weekly
>> nurse has been taking it while in my chair and this last week was
>> 150+/98. Yet at the doc office 2 days before was (with one of those
>> machine type things that take your pulse etc.) 100/70+.
>>
>> I took my blood pressure 3 times during my morning routine for a
>> week--first when my attendant got here--was always very high. Then after
>> breakfast and on my back--went down a little. Last about 10 minutes in
>> my chair, and it would be "normally" low. I showed it to my rehab doc
>> and he did not have much to say because if he gave me something to bring
>> it down, I would pass out in my chair.
>>
>> Now it seems to be consistantly higher for my "low" readings. This has
>> been going on for several years--the really high readings while in bed,
>> but always went back down to normal after I would get up. Lately the
>> 'low' readings are not as low. It has been quite a while since I have
>> had even a 90/60!
>> I am going to see and indocrinologist (sp?) in june to make sure myblood
>> levels and enzymes etc are all good. Got really sick last week and had a
>> strange rash that ran from my groin area up to my belly button and up my
>> sides about halfway. The actual sickness only lasted 1 day, but the rash
>> took 4-5 days to leave. At least the doc got to see it. Whatever it is,
>> it was out of the realm of my rehab doc! --like he should know
>> "everything"! :o)
>>
>> my 2 cents,
>>
>> Dana
>>
>>
>>
>
>
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