Dana, For the heck of it I put a duoderm on what appears to be a pink area where there was a decub (coxics)last summer. BPs been down the last two days. Maybe it is a decub and this is AD.
Thanks, Lana Gabe's mom -----Original Message----- From: Dana Miller [mailto:[EMAIL PROTECTED] Sent: Sunday, June 26, 2005 2:42 PM To: [email protected] Subject: Re: [QUAD-L] back again-help Hi, glad your back! Your post made me remember that after the really bad pressure sore I had on my coxics, heck, tailbone, my blood pressure seemed to start bouncing around. So, in bed there would be pressure on it and when in my chair, little to none. Thats about the only thing that makes sense at any rate. The air bed does the best it can and lying flat has certainly helped the other problem areas! I guess it could be a form of AD, even tho it has been 5 years since the surgery and the area healed very well. There are some things we just can't really figure out and as long as it "aint broke, don't fix it"! BG take care, Dana [EMAIL PROTECTED] ----- Original Message ----- From: "Lana Baugh" <[EMAIL PROTECTED]> To: <[email protected]> Sent: Friday, June 24, 2005 2:28 AM Subject: [QUAD-L] back again-help > Hello again, > > > > My name is Lana and my son Gabe is 32 and has a C4-5 SCI, 10 yrs post. He > also has other disabilities. He cannot participate right now. Question: > Gabe's BP goes up in the afternoon around 3:00 everyday. When he lies down > it goes right back down. So it appears to be AD to me. He developed a > really > bad pressure sore in the hospital last summer, but it healed nicely. It is > still pink. Is there anything else you guys think it could be? It's not a > UTI. I'm wondering if he has another kidney stone or another syrynx (sp). > The timing and positional nature screams pressure sore, but it's healed. > Help! > > > > I just joined again. I have been a member off and on for a number of > years. > Why all the discussion about issues that do not have anything to do with > SCI, disability issues and quality of life? Don't we really need to > discuss > advocacy, legislation, life style issues, the slow death of the ADA and > celebrate each others wins. Like being a grandpa!! God there is so much to > discuss to make life better. We need to address disability discrimination > not other types of discrimination. > > > > I used to come here and there were real conversations about these issues. > One of my favorite posts was from a person who managed to ride on a motor > cycle. She described it in some detail. It inspired me and I'm sure many > to > do and be more. Break the rules - screw the boundaries. The support and > advice I received after my son's injury kept me sane and in turn kept him > sane. > > > > I'm involved in systems advocacy at a State and Federal level. There is so > much to do, learn and be. We have so much to do for ourselves, loved ones > and each other. Can't we please give the discrimination of others with > different colors of skin alone. Don't drive off people who are assets > here. > If you need to discuss these issues go to sites that specialize in it. > > > > Lana > > Gabe's mom > > > >
