50ml per procedure and you leave it in. I guess that’s why it’s called instillation or instilling. Pseudomonas UTI’s are hell to clear up and my experience is you can’t clear them up with oral medication. Gabe had the infection for months prior and it wouldn’t clear up. I think the last go around it was less time, maybe 2-3 weeks. It’s better than being in the hospital.

 

Lana

Gabe’s mom

 


From: Ol' Man River [mailto:[EMAIL PROTECTED]
Sent: Friday, September 16, 2005 2:43 PM
To: [email protected]
Subject: Re: [QUAD-L] pseudomonas UTI

 

WOW  [It usually takes about a month- 4x day to heal completely ]

How much solution per irrigation and how long do you let it sit in there to absorb?  That's 120 procedures...

 

 



Lana Baugh <[EMAIL PROTECTED]> wrote:

Dan,

 

When Gabe had his first pseudomonas UTI the doc tried treating it with oral meds and it didn’t work because pseudomonas is a bacteria that usually attacks the lungs it’s very hard to treat with oral meds. Our home nurse suggested instilling the antibiotic directly into the bladder. The doc said she hadn’t considered it because we didn’t have a regular nurse. We have done this on three occasions now with great success. Sometimes a compounding pharmacy will mix up the antibiotic fluid and sometimes not. The Doc orders sterile water by the liter (bottle) and ampules of antibiotics and I mix it.  Keep it in the fridge. Gabe has to switch the cathing program from the sterile field kits to the old fashion cathing tray 4x day . We do a regular straight cath, then before you remove the cath you instill t! he antibiotic solution with a very large syringe through the cath into the bladder. Literally bathing the inside of the bladder with antibiotics. It usually takes about a month- 4x day to heal completely. But it is the only thing we’ve found that beats pseudomonas UTIs. It’s better than a hospital because Gabe can still do his thing- live life. It’s cheaper. Symptoms –bladder spasms ease up right away. Best of all he doesn’t get an award winning pressure sore or worse pneumonia from the hospital. We had a nurse help us at first, now I do it. I bet who ever covers your medical care would provide for a nurse to come in 4x a day to do this. Anyone can do this procedure. It is an accepted practice for treatment of hard to control UTIs. We handle everything over the phone with the exception of the UAs. Ask your doc about instilling antibiotics directly into the bladder. There are also no side effects like you get with oral meds. We have! a written protocol so everyone could do it the same way. We had to sit down and figure how we could keep all the steps sterile. We did and it works.

Hope this helps.

 

Lana

Gabe’s mom

 

 

 


From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Thursday, September 15, 2005 4:21 PM
To: [EMAIL PROTECTED]; [email protected]
Subject: Re: [QUAD-L] Lori, and others with indwelling type caths.

 

Hi Dan,

 

I don't know that leviquen will work with Pseudomonas as it did not with me.  I was on 2 IV' s four over one month and another month of one of the same medications in my nebulizer at home that the visiting nurses taught my aid to do.  It was a long ordeal.  I was sick four over two months before they diagnosed.  The whole time being suctioned a lot.  I finally went to a lung Doctor to get diagnosed.  I went to ER twice for diagnosis.. I found that you must get a tracheal culture anytime to be diagnosed, now I always do.. I guess you are talking about urinary Pseudomonas, and mine was lung, it seems like they would be similar in treatment although I don't know.

 

. Dana (C-4-5, 31 years post, 52, KC)

 

  belong  of In a message dated 9/15/2005 4:42:57 P.M. Central Daylight Time, [EMAIL PROTECTED] writes:

Error! Cannot read or display file.Error! Cannot read or display file.

     Lori, I know you had quite a problem with a PROTEUS infection. I had a very serious PSEUDAMONAS infection that put in into the hospital for 1 week on IV drugs about a year and a half back, that my Urologist said he knew about but wanted to let it go, to see if I could get better on my own.....Well it really messed me up and destroyed much of my white blood cells back then. NOW this Urologist say's I must go to my family Doc for all bladder infections. Well my family Doctor just told me I got Pseudamoas AGAIN Today ! He wants to try and treat it with ORAL anti-biotics -- Levequin.  Do any of you know if the more serious types of bacteria can be treated like that or do they require IV Drugs ?? I'm Lost and confused on this...as my Doctors seem unsure themselves. I just gave blood today to see if my blood cells are messed up again............   Thanks,        Dan

 

.

 


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