Re: FW: [QUAD-L] About A.D. = Autonomic Dysflexia

[Eric Olson]

My diastolic is above 110 just about every time I go from chair to bed.  It usually comes down without doing anything.  I never take anything.  Maybe I should look into taking something.  Trouble is, when I'm in the chair, my pressure is really low.  Eric Lana Baugh wrote:     From: Lana Baugh [mailto:[EMAIL PROTECTED]] Sent: Sunday, October 23, 2005 2:56 PM To: 'Brien Stocker' Subject: RE: [QUAD-L] About A.D. = Autonomic Dysflexia   Brien,   Gabe carries procardia. It is a gel capsule. You snip or bite off the tip and squeeze it under your tongue and swallow the remaining pill. If the high BP doesn’t resolve in 15 minutes, repeat. One more repeat if it doesn’t resolve in 15 minutes. If it doesn’t resolve at that point call the rehab doc and 911. The protocol was worked up with a doc. AD is dangerous because if it doesn’t resolve quickly the BP can climb fast. We have a 45 minute window for the aides. They need to cath, check bowels, check for any other irritation- they usually find the problem in the first 10 minutes. If not they start the procardia. We start action when the diastolic is 90. if it reaches 110 despite all the treatment listed above that’s when 911 is called and the rehab doc. Our original plan idea came from the PVA SCI book.   If your doc will not prescribe you should ask for a plan. If he can’t give you one with medication, get a new doc. I know I’m pushy. I hope I do not offend. It just pisses me off when I hear things like what you said. You deserve better.   Lana Gabe’s mom 10 yrs post C 4-5   From: Brien Stocker [mailto:[EMAIL PROTECTED]] Sent: Sunday, October 23, 2005 12:35 PM To: Lana Baugh Subject: Re: [QUAD-L] About A.D. = Autonomic Dysflexia   Lana Baugh wrote: From the info I’ve read on AD, it is the number 1 cause of death in individuals with a SCI. The number 1 cause of unresolved AD was kidney stones.   Fortunately, most of Gabe’s specialists take it seriously. It’s the reg MDs and the nurses that don’t seem to have a clue. He carries an emergency sheet around in his back pack. I have attached a 4 page document on AD that his aides or docs can access in an emergency. I copied it out of the PVA book on SCI.   The problem is when you really need them to understand or know about it - the most important times – they know zip. Gabe suffers, risks serious damage- possibly death and we look into a blank face.   Now we try to go through the Rehab doc as much as possible. He says the other docs do not have a clue. They want us to call them when AD occurs regardless of the cause and they call the other doc.   When Gabe is in the hospital and everyone pales when we try and discuss that the foley kink and high BP are related I want to pull my hair out. One nurse helped out a couple of years ago. She pulled up the info on AD, printed it out and put it on the front of Gabe’s chart. Everyone had to see it. Still I can’t always control what’s on the front of a chart.   I think everyone should list their occupation as attorney. Maybe you’re just currently unemployed. My husband is an attorney and several docs somehow got the idea I was. I never said I was. I haven’t said I am. Who knows what could lurk in the mind of a women who is an attorney J and mighty pissed.   Best wishes on dealing with AD.   Lana Gabe’s mom 10 yrs post C 4-5       From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]] Sent: Friday, October 21, 2005 3:34 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] About A.D. = Autonomic Dysflexia   Error! Cannot read or display file.Error! Cannot read or display file. AD is a life-threatening problem.  It can raise your blood pressure to where you can have severe strokes and heart damage.   Jim There is a short term fast acting pill too reduce blood pressure.  I  asked my primary doc to give me some and he said NO.  Does anybody carry that med with them when they are prone to AD.  When I have AD, I am afraid I am going to have  a stroke and would like to lower my BP.  Any Ideas, folks? Brien