RE: [QUAD-L] Work

[Steve Oldaker]

Dillon...   I have worked for the federal government for almost 15 years as an Information Technology Specialist.  Duties have included database application development, IT security, web page development, and software support.  I have done IT project management for the last year or so.   I primarily use voice recognition software to operate my computers, though occasionally use a mouthstick when I am in my chair.  Unfortunately, like you, I have periodic bouts with skin breakdown that keeps me out of the chair for 1-2 weeks at a time.  Fortunately, I am able to work at home while in bed thanks to the voice recognition software and the ability to connect to my office network via the Internet.  I attend work meetings via teleconference when working at home.  Work documents are easily exchanged via email attachment or fax.  My boss and upper management are very supportive of this arrangement when needed.  I have proven to them that I am just as effective and productive working at home as I am in the office, although I prefer to work in the office so I can more directly interact with my peers.   I echo Lori's comments regarding focusing on your skills, accomplishments and what value you have to offer when seeking employment.  Do not mention your disability if it has no relevance to the job for which you are applying.  The prospective employer will learn of your disability when you are interviewed, and this is when you briefly explain that it is manageable and address any accommodations needed to perform the work.   I made it very clear when interviewed for my current position that I did not want any favors or special treatment so I would be able to interact and compete with my peers on an even level if hired.  I did get hired in part as the result of an affirmative employment plan, but I have been promoted and/or received an outstanding performance appraisal every year since hired.   I strongly suggest offering or requesting to work as an intern for your prospective employer if they will not hire you outright.  This will give you an opportunity to demonstrate your ability to do the work and fit into the organization.  I worked as an intern full time without pay for four months before being hired.  I know it played a big part in the decision to hire me.   Not knowing your skill sets, I cannot offer specific recommendations for types of employment, but given your periodic skin issues, a job that can be performed on the computer and/or telephone, especially at home if needed, would be ideal.  Employers are becoming less concerned with how and where you work as long as you can meet their work objectives.  Marketable skills, enthusiasm and a "can do" spirit will overcome many attitudinal barriers held by prospective employers.   There is some good information and advice on employment of people with disabilities at the following web site:   http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=9   Good luck in your quest for employment!   Steve - C4 From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Friday, March 17, 2006 5:22 PM To: Quad Subject: [QUAD-L] Work   Many others can answer this question as well.  I got a B.S. in liberal studies and business administration.  I wanted to work for IBM as it was a big local firm but all resumes were ignored there and other jobs.   I took a job at an ILC and worked as an advocate of kids receiving special-ed.  It only required an Associate's degree but I took it.  Fool move.  It only paid $16,500K.  That = about $7.50 ban hour.  Nonetheless I stuck with it.  Then I began having pain here and there ALL THE TIME.  I went to different Drs for 4-5 yrs and finally found out I had Syringomyelia.   I resigned from work (foolish move ... shoulda retired on disability).  My endurance now sucks along with other secondary problems later and yr after yr.    It SUCKS my degree isn't being used RIGHT NOW but I keep plenty busy!    Go to work if you can!  People whine about women on welfare yet so many quads get exactly that.  Call it Medicaid, Public Assistance or whatever ... but it's welfare and I'll get slammed here for not being P.C.!   If you know what you want to do ... reach for it!  GO FOR IT!   TIP:  DO NOT put that you are disabled on your resume.  I was green as key lime pie when I was doing mine/sending mine and made that mistake.  List only your experience, degrees, etc.   Lori   -------Original Message-------   From: Dillon Ewa Date: 03/16/06 12:58:14 To: Lori Michaelson; Quad Subject: Re: [QUAD-L] Irrigants for Sludge and Sediment in FOLEY USERS   Lori I want to change subjects and ask you another question.  I have not been able to find employment not only because of our problem with sediment in my urine but mainly because of recurrent pressure sores.  I want to ask you if you were employed and what you are doing.  My repeated attempts to seek employment have been frustrated because of my skin and I wanted to learn what others are done explicit because your entry-level is high and similar to mine. I would appreciate any advice or information you could provide me Dillon C-4/5