It could still be neuropathic pain.  I sympathize.  I haven't figured out how to treat my pain yet.   Unfortunately, determining whether there's something physically wrong with you or it's neuropathic pain is difficult at best.  Keep us informed about what things work and what things don't.  It may help someone else. 

Eric


Fragile wrote:
I've considered neuropathic pain or a syrinx, that's what I had an MRI done and tried neurontin and lyrica.  Strange, MRI showed a normal spinal cord.

On 3/20/06, Eric Olson <[EMAIL PROTECTED]> wrote:
Could it be neuropathic pain?  A syrinx?  If nerve blacks work, even if only for 6 months, I'd go that route.  This website is very interesting. 

Eric

Fragile wrote:
posted this on the care cure forums, unfortunately no replies yet : (, hopefully somebody here has some advice.

has anyone ever been diagnosed with Coccydynia/coccygodenia?  I've had very bad pain around my colon since the summer of 2004.  Two general doctors, a neurologist and a gastroenterologist haven't been able to do anything about it. Colonoscopy revealed minor proctitis and grade 1 hemorrhoids, the treatments did nothing for the pain. Spinal cord MRI didn't show anything.  I've tried neurontin (900 mg per day), lyrica (300 mg per day), neither made any difference.  On Friday I went to a second gastroenterologist, he believes I damaged my coccyx somehow.  He told me the name of the condition he believed was causing the pain, but I couldn't quite understand the name because of his heavy Russian accent.  Ended up showing me the word coccyx in a medical book.  He believed my only options were pain medications which would eventually wear off and leave me in more pain then I'm in now.  Or, they could do a procedure to block the nerves, but that would only offer relief for about six months and it would mess up my bowel program.  Did a search on Google for coccyx pain and Coccydynia seems to be what comes up most.  I believe coccygodenia is what the gastroenterologist was trying to say.  If anybody has been diagnosed with Coccydynia, coccygodenia  or any kind of pain coming from a damaged tailbone, I'd appreciate any advice.  C5, incomplete, 12 years post.

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