Yeah, you are right, Brien. Sometimes the buts and what-ifs just become
overwhelming.Love and presence are what count.
From: Brien <[EMAIL PROTECTED]>
To: [email protected]
CC: [email protected]
Subject: Re: [QUAD-L] suddenly
Date: Tue, 4 Apr 2006 13:30:57 -0700
Your glass is very half empty, with all due respect. Your frequent
presence or availability for your child is what children need most and
don't get often enough. babysitters and tv's etc have replaced stay at
home parents. You are there 24/7 to provide unconditional love. How
fabulous!!!
Best,
Brien
On Apr 2, 2006, at 11:15 AM, William Willis wrote:
I have a 5-year-old son, and it absolutely kills me not to be able to
take him fishing, play ball, or wrestle on the floor with him. I know
very well what I am missing, and it is torture.
From: ~LittleQuad~ <[EMAIL PROTECTED]>
To: Ellen Jones <[EMAIL PROTECTED]>, Quad-list post <quad-
[EMAIL PROTECTED]>
Subject: Re: [QUAD-L] suddenly
Date: Sat, 1 Apr 2006 13:24:51 -0800 (PST)
Ellen,
I truly think it makes a difference. Someone who was born with a
debilitating disease never really knows the difference (my opinion). All
the know is waking up to a wheelchair or being bedridden.
As for me, I spent the first 18 years of life walking, running, being
extremely athletic (track, cross-country, softball, volleyball,
basketball and cheerleader), dancing, going up / down stairs. I knew
what is what like being able to type with all 10 fingers, pinching my
boyfriend in bed with my toes, getting up to go pee when I needed too,
taking a long hot shower or bath (easier to have companion without
shower chair in way) etc. When I was injured it took it all away. I know
what I am missing. Is that making sense?
The thing I miss the most is carrying my son around with me on
errands or when I went running (he was then under 5 months old). Now at
almost 8 I want to teach him to play baseball like I did, take his
karate classes with him. I know what I am missing.
Sincerely,
Amye
Ellen Jones <[EMAIL PROTECTED]> wrote:
Hi, my name is Ellen and I have a quick question that might seem a
little off topic, but I'm curious. Do any of you that became quads
"suddenly" (accident, etc.) think there's a difference between how you
approach your life and how someone whose acquired their condition
gradually looks at things? I am not a quad myself, but I'm an
undergraduate anthropology student researching the importance of
listservs as sources of support and I'm curious about how people might
(or might not) consider the ways in which people acquired their
condition... any answer would be great!
take care
