Re: [QUAD-L] Need Advice

[Stacy Harim]

I agree lol.  This jerk would pull me up so hard when I got xrayed.  I choked on that vent so bad and would try to get a min out of him and he would basically yell at me.  I wish  I could talk because he was about the same age as me and you would think that reality would set in that it could happen to him.  I had a lot of nurses and aides that were around the same age be sympathetic with me for that reason.  Just because it was so weird what happened.  I got a type of encephalitis with no warning signs.  It hit me overnight then all the sudden I couldn't get up.  Pushing a month in a coma and a little longer than that in neuro critical care.  I agree a nightmare.  When I went to rehab it was the same thing with some of the nurses.  They would want to dress me in whatever and I wouldn't have it.  I got in an argument with one nurse over it.  I had visitors coming and I didn't want to be dressed in pajamas.  She got so (excuse me for saying( shitty with me.  No one wanted to give me that amount of care.  Since I needed so much care, a lot of them would save me for last in the morning and then I would be late for rehab almost every day.  It was pretty bad.  I finally got independent and could dress and transfer myself once I got my arms back and learned how, but I couldn't transfer without someone being in there.  I would  have to cath in the middle of the day and it was the same story.  I would hit the button and no one would answer my light.  One day my therapist finally came down, watched me transfer, then had a fit.  She went directly to the charge nurse telling them it took not even 5 mins and it was ridiculous.  When I couldn't transfer, no one knew how to help me.  For a rehab hospital, you would think that people would be more patient with someone that needed help. yea right, fat chance.  I'm sure we all have those horror stories.  I just hope when I go back for this flap, it is a better situation.   Stacy ----- Original Message ----- From: S. Dial To: Stacy Harim ; quad-list@eskimo.com Sent: Wednesday, April 19, 2006 4:44 PM Subject: Re: [QUAD-L] Need Advice Stacy,   Thank you for sharing your story with me, I am so sorry you were subjected to such callousness. Like you, I can clearly recall the names of the cruel ones. My first one was a Diane in ICU who continuously told me to shut up whenever I made the only sound I could (a tongue clicking) to signal for human contact. My time (9 days) in that ICU was the most frightening time of my life compounded by the restricted visiting hours and my inability to communicate to my family the extent of hell I was going through. I came back 3 months later looking for her though and she wasn't there, luckily for me, because all I had in mind to do was mow her down with my chair! I'd have been probably the 1st high-level quad in prison for assault with deadly intent, huh?       Steph the Savage :op