|
Mark,
Why is there such a big difference, depending on your age of injury? , I know a guy who died, in Kansas City, because he did not have any care during the night and he was on a ventilator 24/7. He wanted to live independently, he died because of that. Independent should not be something, one has to give up, just because they are ventilator dependent.
He was a peer support counselor and he came to the hospital to try to tell me that I could live with a ventilator, when I thought I was going to have one.
Dana.
|
--- Begin Message ---
Are family members responsible for the rest of time? Many don't realize vent users can't be left alone. Actually, I'd love to be left alone but it's not worth risking my life. I missed 24/7 by a year. Do you need to go through an agency or does the state give you money and you hire /fire yourself? I assume you mean PCA'S not nurses right? I'd like to move south and get my wife away from her family but most of the southern states have lousy social services.
Eric
QuadPirate wrote:
Eric
QuadPirate wrote:
Lori C4/5 Complete
Tucson, AZ
AGE - 41
26 yrs post
--- End Message ---
