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My spinal pain [that I attribute to my shunted SYRINX] goes from the bottom of my neck to about the middle of my back. I did not have any of this pain UNTIL two years after my surgery but, after those two years and despite my MRI showing that the fluid is draining fine, the pain slowly got worse and worse and worse.
My surgery was in 1995. My primary care physician that I got about a year ago suspects that the shunt goes through nerves and muscle. And there is really not much they can do about it.
One thing is for certain ... unless I am severely losing feeling or movement ... I am not going to let anyone fiddle with my spine again.
My spine feels like a stretched rubber band a lot of the time. Again, this was never present the first two years afterward or even before I had the surgery to drain the CSF. I cannot look down for long periods of time because it feels like I am stretching my entire spinal cord and then it aches tremendously.
And I know a lot of it is muscular as well because the more I use my arm and stretched the muscles that are under my right shoulder blade [in close proximity to where my shunt resides as well] ... the pain exacerbates.
In sum, it is best when I do not move at all. But I do not let myself live that way. The only drug that I have taken over the years that has helped has been OxyContin. I tried NEURONTIN but that was a nightmare. And that drug is way over prescribed these days for many people. Not just for people with spinal cord injuries.
I do not want to be on any more drugs at this point so I am just dealing with the pain. Living here in the South has helped tremendously.
Lori C4/5 Complete
Tucson, AZ
AGE - 41
-------Original Message-------
Date: 04/24/06 10:56:14
Subject: Re: [QUAD-L] Hey Dan...about lyrica
Ok, Ron i'll let you know, I have lots of syrinx pain also...Not sure on when I can get to a doctor tho-- my internist doctor moved away to become a workmans comp doctor, so I will probably have to go see a pain management doc or spinal doc. Dan
RONALD L PRACHT <[EMAIL PROTECTED]> wrote:
Hey,
Let me know when you try lyrica. im struggling with this syrinx pain. Its not stopping me but its not letting me pursue some of the goals I wanted. The amytriptyline does a lil good at night but not to much. Its hard for me to commit to obligations such as school, when im in this pain.
Ron c7 8 years in quadadise
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