Hey,
Im a c7 quad and live with my father in a house he owns. I think the best thing to do is be realistic and realize that our fathers wont be around forever . Sitting and talking with your father and family can help prepare you for the day it happens. I have done things such as set up a special needs trust, so I can save money and still receive government benefits.Dont put anything that amounts to squat in your name, the broker you are on paper the more benefits you will receive when your dad passes. Keep a log on all the case managers and opportunities for help, such as food stamps, funding for personal care, transportation, housing. Instead of being scared....prepare. Theres help out there if you access the right places, in short learn the ropes b4 your dad passes. Also find out who gets the house when dad passes...is it paid off, these are key things you need to know. Ive even discussed my dads wishes after he dies.
As far as friends, if you seem like a needy person you will run any potential friends off. Its ok to ask for simple things now and then, but if people think your always going to need something from them there are few people that will come around. Remember the saying that blood is thicker than water. Dont burn any family bridges they are the only ones that will be there for sure if crap falls apart. Dont get me wrong people will come and go, but it is very seldom you will find someone that will be by your side forever. Everything in life has a duration period, meaning everything ends. Fear is normal to cross your mind but the more you prepare the less fear you will have, kinda like a test...the more you study the less fear of failure. Obviously some things are out of your control, those things just have to fall where they may and deal with it any way u can.
When I think I cant handle things and feel im going down , i just tell myself I
may go down but not today. I take one day at a time.
Ron c7 8 years post
