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The two WORST sores that I have had in my 26
years of being a quad ... have been in the last 4 1/2 years. And
by process of elimination ... my most recent one
[summer of 2004] quadrupled in size almost overnight but began
because of moisture "down there."
Once they get started they are almost like wildfires
in the desert. We tried absolutely everything. And it
refused to respond to anything.
The first one [summer of 2001] that I
had began as a tiny pimple on the back of my thigh! We were
traveling cross-country to move here to Tucson. My husband was
keeping an eye on it the entire time. It stayed stable.
After we settled in, it began to get worse and before I knew
it .... I was bedridden. I move to a 60% drier climate ...
and I get sores caused by moisture! Go figure!
And I do not know whether it is aging, or what, but my
skin does not want to heal like it did years ago.
Wait a minute ... I just remembered that my first sore
began by being "yeast" but since there was no odor and no other signs of
"yeast" ... the home health agency nurses treated it as a decubitus
ulcer and actually made it worse by doing so!
When we were at our wits end ... we sent a wild
close-up digital photo of the deep sore to my doctor and she said that
it looked like "yeast" and to go ahead and put it yeast cream DIRECTLY
on the wound. Even though the home health agency nurse were
shaking her head no.
After we did that ... it cleared up pretty
quickly. After months of listening to the home health "experts"
... it all could have been avoided. But, of course, we cannot
dwell on what has happened. It only makes us wiser [we hope] for
future problems.
You have probably seen that my most recent dilemma was
those huge bladder stones. I was so nervous to go into the
hospital to have such a procedure done. But I had so many friends
and family as well as many church friends who gave me individual
blessings ... then I came out the same day as if I never had any surgery
done whatsoever.
So I will be praying for you and sending you vibes to
calm your fears. It was not until recently that I began to believe
in the power of strong meditation for myself or others. It is a
fact that can not destroy "energy" so I believe that is part of what
works.
I have heard people talk about flap surgery for a long
time now and often times used as a last resort. The thing that I wonder about is that if they are
going to "remove skin" from another part of the body ... what is to say
that that procedure will not encourage breakdown in THAT area as
well? no matter how much or how little they
remove.
I can't remember if you said or not ... what state and
what hospital will you be going into?
Lori C4/5 Complete
Tucson, AZ
AGE - 41
-------Original
Message-------
Date: 05/29/06
15:16:11
Subject: Re: [QUAD-L]
abcesses, sores and such...are these preventable?
I had no idea. I was up so many hours studying for finals and
writing papers. There were a few all nighters there. It’s a
stressful time during finals. I did do pressure reliefs and
changed positions as much as I could. Anyhow when I noticed the
sore I got pressure mapped and they decided I needed a new gel overlay
for my cushion. Medicare refused it and I live alone. I had
to get up. It was healing from the sides but getting deeper.
Strange I didn't feel it coming but it hurts like hell now and my spasms
are off the rictor . I am maxed out on all spasm meds and they
wont consider the pump for at least another 4 months.
Stacy
----- Original Message -----
Sent: Monday, May 29, 2006 10:01
AM
Subject: Re: [QUAD-L] abcesses,
sores and such...are these preventable?
My doc has no idea how mine started - he said it might be as simple
as an ingrown hair. I was trying a new cushion at the time which
had some pressure there as I sat down. Within seconds, the
pressure sensation faded and I couldn't tell anything. I was also
often sitting up around 18 hours on days when I noticed some
'swelling' the next mornings. My bad, I knew better AND I knew
more than the doc - surprise surprise.
Dave
In a message dated 5/28/2006 9:56:48 P.M. US Mountain Standard
Time, [EMAIL PROTECTED] writes:
I
am also praying for you, Stacy!
What I'd like to know from you all
are- how do these things happen? Is this some freak thing, these
deep sores, or are they preventable? It's
scary!
-kaye
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