Hi, I had probems in this area as well. The hospitals want to use their vents when my body is used to my LP-10. I just refused to use the hospitals vents while in ICU or a procedure needs to be done away from my chair. They dont like it but I dont give them a choice.
Rick --- Angelique Novak <[EMAIL PROTECTED]> wrote: > My vent stays on my chair, so wheeling down to the > OR on the table thing > and being transferred to the operating table, then > being wheeled into > recovery, and waiting for my parents and chair with > my vent, all > requires the hospital to provide a vent. It wasn't > an issue 5-4 years > ago, they had and used LP-10s, but since 2003, they > don't. They > actually look confused when I say, "I want an LP-10 > vent. Do you have > one?" They don't know what it is, and these are the > RTs! It's > frustrating. > -Angelique > > Silas wrote: > > > I don't go anywhere without my vent, why can't you > use your own > > vent?Silas > > > > ----- Original Message ----- > > From: Angelique Novak > > To: [EMAIL PROTECTED] ; Quad List > > Sent: Monday, July 17, 2006 10:58 AM > > Subject: [QUAD-L] Re: [VENT-L] Could this > happen to you? > > Every surgery I've had in the last several > years always has > > vent issues for recovery. I'm on an LP-10, > 24/7. The > > hospitals don't even have them anymore! At > least, that's > > what they tell me. They put me on > "continuous flow" vents. > > I hate those! It's basically > hyperventilating. I have my > > vent settings with me, but they don't jive > with the PLV-1000 > > that they tried last time, or the other non > LP-10 vents > > they've used. The RTs get a hair up their > ass when I don't > > want their vents. > > -Angelique > > Age 25, ventilator dependent quadriplegic > from a spinal cord > > injury at the levels of C1 & C2 in 1994 > > > > [EMAIL PROTECTED] wrote: > > > > > > > > This tough polio survivor lady self manages > her care, and > > > is now on the PLV-102 ventilator full time. > She takes a > > > hard fall while transferring with the help > of her > > > attendant. The femur bone is broken just > above the knee. > > > She describes it as the worst pain she has > ever > > > experienced. Emergency surgery is done to > repair the > > > broken femur. > > > > > > With considerable delay after surgery they > finally let her > > > sister and attendant in to see her. They are > shocked. She > > > is unconscious and struggling to supplement > the hospital > > > ventilator. Her sister and the attendant > want to put her > > > on her PLV-102 which is set up for her. > There is a > > > confrontation, and the recovery room > personnel refuse to > > > let them do it. They threaten them with > being arrested if > > > they try to switch the ventilators.The > sister gets some > > > quick legal advice, and is told exactly what > to say to the > > > hospital RTs. They back off, and she is put > on her PLV-102 > > > for the beginning of recovery. > > > > > > This should never have happened. All > respiratory > > > therapists and respiratory care nurses are > not experienced > > > with paralytic patient Control Mode > ventilation. Sometimes > > > they try to wean patients using Assist Mode > without > > > knowing enough about the patient. The slow > rate and small > > > volumes of Assist are not adequate > ventilation for us. > > > > > > What might be a good idea is to have our > vent settings > > > written into our medical directory, and > signed by the > > > pulmonologist. Give the patient, our family > and attendant > > > some respectâplease. > > > > > > Jerry Daniel > > > __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
