in case someone is
new to the list
Women's Survey - WE NEED YOUR INPUT
PLEASE!
PRESS RELEASE
For Immediate Release: August 24, 2006
Contact: Jennifer Rodriguez, (O) 800-404-2898, ext. 282/ (M) 917-734-1608/ [EMAIL PROTECTED]
United Spinal Expands Survey to Meet the Needs of Disabled Women Nationwide!
United Spinal Association is seeking participants for a nationwide survey of women with spinal cord injuries and disorders (SCI/D). United Spinal’s Women Without Limits Advisory Committee developed a questionnaire on the specific needs, concerns, and interests of women with SCI/D as they relate to health care and health information, community resources, civil rights, and overall quality of life. The survey was made available to United Spinal’s female members in the spring of 2006 and is now available to all women with SCI/D at by visiting www.unitedspinal.org/womensurvey/
An executive summary of the original survey was prepared by advisory committee members who are also affiliated with the American Association of Spinal Cord Injury Psychologists and Social Workers. Of the 177 survey respondents, the largest group was women with multiple sclerosis (49%), followed by SCI––tetraplegia or paraplegia (42%). A small number of respondents identified SCI related to other neurological disorders.
“As a disabled woman, I know firsthand the importance of this survey and as a result, the much needed resources that will be developed to assist disabled women nation-wide,” said Wendy Crawford, Chairperson of Women Without Limits and founder of mobileWOMEN.org.
Traditionally, women with disabilities have faced numerous barriers to accessing adequate health care, including inaccessible examining tables and mammography machines and health care professionals with little or no knowledge of sexuality and reproductive health care issues affecting women with SCI. About half the respondents (52%) stated that information and resources on sexual functioning was “challenging” to “very difficult” to find. A large number of women with SCI/SCD reported barriers to accessing the exam table/chair for PAP smears and pelvic examinations, and approximately one fifth of the respondents reported having experienced neglect of health care and being denied use of their mobility aid.
United Spinal Association understands and appreciates the unique issues facing women with disabilities. United Spinal’s Women Without Limits Advisory Committee is comprised of a very specialized group of disabled women and professionals from across the country experienced in health care issues for women with disabilities. The committee is committed to enhancing the lives of all women with SCI/D. Additional useful information can be found in the Association’s newest pamphlet, Women’s Health: Special Considerations for Women with Spinal Cord Injury and Disorders. Copies may be obtained by calling 800-404-2898, ext. 278, or by e-mailing at [EMAIL PROTECTED].
United Spinal Association is a national membership organization for people with spinal cord injuries and disorders (SCI/D). Membership is free and open to all people with spinal cord disabilities. For more information visit our Web site at www.unitedspinal.org or call 800-404-2898.
For Immediate Release: August 24, 2006
Contact: Jennifer Rodriguez, (O) 800-404-2898, ext. 282/ (M) 917-734-1608/ [EMAIL PROTECTED]
United Spinal Expands Survey to Meet the Needs of Disabled Women Nationwide!
United Spinal Association is seeking participants for a nationwide survey of women with spinal cord injuries and disorders (SCI/D). United Spinal’s Women Without Limits Advisory Committee developed a questionnaire on the specific needs, concerns, and interests of women with SCI/D as they relate to health care and health information, community resources, civil rights, and overall quality of life. The survey was made available to United Spinal’s female members in the spring of 2006 and is now available to all women with SCI/D at by visiting www.unitedspinal.org/womensurvey/
An executive summary of the original survey was prepared by advisory committee members who are also affiliated with the American Association of Spinal Cord Injury Psychologists and Social Workers. Of the 177 survey respondents, the largest group was women with multiple sclerosis (49%), followed by SCI––tetraplegia or paraplegia (42%). A small number of respondents identified SCI related to other neurological disorders.
“As a disabled woman, I know firsthand the importance of this survey and as a result, the much needed resources that will be developed to assist disabled women nation-wide,” said Wendy Crawford, Chairperson of Women Without Limits and founder of mobileWOMEN.org.
Traditionally, women with disabilities have faced numerous barriers to accessing adequate health care, including inaccessible examining tables and mammography machines and health care professionals with little or no knowledge of sexuality and reproductive health care issues affecting women with SCI. About half the respondents (52%) stated that information and resources on sexual functioning was “challenging” to “very difficult” to find. A large number of women with SCI/SCD reported barriers to accessing the exam table/chair for PAP smears and pelvic examinations, and approximately one fifth of the respondents reported having experienced neglect of health care and being denied use of their mobility aid.
United Spinal Association understands and appreciates the unique issues facing women with disabilities. United Spinal’s Women Without Limits Advisory Committee is comprised of a very specialized group of disabled women and professionals from across the country experienced in health care issues for women with disabilities. The committee is committed to enhancing the lives of all women with SCI/D. Additional useful information can be found in the Association’s newest pamphlet, Women’s Health: Special Considerations for Women with Spinal Cord Injury and Disorders. Copies may be obtained by calling 800-404-2898, ext. 278, or by e-mailing at [EMAIL PROTECTED].
United Spinal Association is a national membership organization for people with spinal cord injuries and disorders (SCI/D). Membership is free and open to all people with spinal cord disabilities. For more information visit our Web site at www.unitedspinal.org or call 800-404-2898.
