She is adorable and has a good voice!  Wish we could have heard her  standup 
comedy I bet it was great.  I looked her up net and I found several  articles 
about her illness and having fundraisers to raise money to modify her  house 
and get a van.  There was even was a profile from her boyfriend in  the late 
that something called live journal.  I wonder if he stayed with  her, I hope 
so. 
 It seems most boyfriends don't and mine didn't.  What  do girlfriends do you 
guys?
 
Jim, Thank you so much for providing the video.
 
 
   
She is a fine looking young lady with an awesome outlook on life!
 
With Love,

CtrlAltDel aka Dave
C4/5  Complete - 30 Years Post
Texas,  USA


Jim Lubin <[EMAIL PROTECTED]> wrote:

I felt like a kid at Disneyland. Don't know if you have seen that  Disneyland 
commercial where the little kid says "We're to excited to sleep",  that's 
exactly what it was like. I went to bed around 3am then my nurse  started 
getting 
me up at 6:30am so we would make it to breakfast. No one  wanted to miss 
anything. As one of the camp directors said during the closing  program, "sleep 
is 
overrated. you can sleep when you leave camp."

They  told me that was how Christopher Reeve traveled. The flight nurse told 
me that  we use the callsign Lifeguard, meaning medical transport, so that we 
have  priority status going into any airport. Only 2 other aircraft have 
priority  over that, Air Force One and Air Force Two.

Correct, I don't go out  much at all. I did go to a meeting we had here in 
Seattle a few years ago.  That was the time my ventilator stopped working in 
the 
van on the way home. I  had to be bagged for about 20 minutes until I made it 
home to my other vent.  One of the doctors mentioned that he was surprised 
when he heard I agreed to  go after that had happened before. I figured there 
was a backup vent on the  plane so there was nothing to worry about. 

I got to meet another vent  dependent quad due to TM. She is 17 and just got 
sick a year ago. She was born  just 10 days before I got sick. She is awesome! 
Check out one of her  videos.
_http://video.google.com/videoplay?docid=4064072710368966941&q=alana+swagerty&;
hl=en_ 
(http://video.google.com/videoplay?docid=4064072710368966941&q=alana+swagerty&hl=en)
   
She decided to sing at the talent show at camp, and also a "stand up"  comedy 
routine. I was laughing so much my eyes got teary. 


At 09:52  AM 11/21/2006, [EMAIL PROTECTED] wrote:

Geez O Pete and  ShaaaaaZam!

Reading your post was liking reading about a young  kid going to Disneyland, 
lol.
Glad you enjoyed yourself and feeling the  experience  on how Christopher 
Reeve traveled several times a year,  when he was healthy.
If I remember correctly, this is the first major  trip you've taken since 
TMA.  Who knows the impact of your inspiration  on those you touched this year 
at 
VJG Camp, and those who attended.
I  sincerely hope that you have more opportunities to travel again.  That  
had to be scary in the beginning, when you left the safety and security of  
your 
home.
We want to hear more!
Best Wishes
W
----
Jim  Lubin                
[EMAIL PROTECTED]
_http://makoa.org/jim_ (http://makoa.org/jim)   
disAbility Resources: _http://www.makoa.org



_ (http://www.makoa.org/) 



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