Wow Dana I did n't know all that! If that was in the eighties then you were paving the road for all of us and didn't know it. I didn't think they started in home care until late 80's or early 90's.
I know exactly what you're talking about in the NH too, I went from 185 to 125lbs in 3 months and had a horrible pressure sore from my first NH. I hated the place and the filth there, it stunk like a dirty toilet. Thanks to people like you I'm living at home now Peace, Mark Jackson ----- Original Message ----- From: To: [EMAIL PROTECTED];[EMAIL PROTECTED];[email protected] Sent: 1/9/2007 3:17:41 AM Subject: Re: [QUAD-L] hey Linda I lived in a nursing home three years. I was kicked out a few weeks, after I moved in because my care was too much for the price they were getting from the state. A woman that ran the Kansas for the improvement in a nursing home came to visit me and then a reporter came. His story was spread throughout state and he got some kind of award. The state came in and provided aides that I would hire myself to get me up and put me to bed. At the end of the three years, the state wanted to provide less money and less aid. I was at Craig rehab for a evaluation that the state was requiring. When it was time for me to come home, I was told I didn't have a place to go as I had been evicted. I stayed with my grandma for one week and then with my mother for three weeks until I could get a high-rise apartment They both worked . My mother had three teenagers living with her in an apartment, as my parents had divorced. A nurse was hired for the payment and I looked for my aides. Th! is was in 1980. I was one of the first in three persons with disabilities to get care at home. I had this program for about one year and then the state started care from an office with caseworkers. It was very depressing, other residents would come in my room if the door was open and possibly urinate on my bed. I remember one weekend when I was gone , some staff were in my room and burned a hole in my blanket. I had several items of clothing stolen also. There was no privacy regarding staff, some of them would be very unwilling to help me even though they did my bowel routine, turn me, feed me my evening meal. I remember waking up and a staff member was going to take advantage of me. He was fired and hired again. I was alway calling the health department for cockroaches and leaving me dirty. I was not liked by the owners as you can imagine. I remember going to class and baby cockroaches were crawling out of my tape recorder. When did home care start in other states? Dana
