Hi.......great letter.......but...it all comes down to 'medically necessary'.  
Medicare does not put into their equation quality of life, emotional well being 
or risk outside of the home.  Going outside may be a necessity but it is not, 
according to Medicare, a medical necessity.

Their lone objective is to keep the patient out of the hospital.  Their view is 
strictly day to day.  Meaning, that if the patient does not get the piece of 
equipment/supply it will land them in the hospital.  They are not in a position 
to lose any lawsuits and could, unfortunately, care less about jobs, wages, and 
economical impact.

Unfortunately our numbers as a cohesive unit are not large enough and our voice 
is not loud enough.  i.e. Stem Cell Research

This means we must continue to use each other as a resource.....in every way.

Be well.

Paul Jacobson, c5/6  Injured:  11/03
Paul Jacobson Spinal Cord Foundation
www.hospitaltohome.org
San Diego, CA

  ----- Original Message ----- 
  From: B. Kimberlin (Quadius) 
  To: Bill_J 
  Cc: [email protected] 
  Sent: Thursday, January 25, 2007 2:39 PM
  Subject: Re: [QUAD-L] New 2006 medicare wheelchair codes


  Well-written Bill.  The only thing I might suggest is you send it to your 
Senators and your Representative.
  Quadius

  Bill_J <[EMAIL PROTECTED]> wrote: 
    Here's the letter I sent to my federal legislators, CMS, The Sectretary of 
Health & Human Services, Bush, Cheney, Nancy Pelosi and many others in Nov, 
2006.

    To Whom It May Concern:
     
    I was recently made aware that Medicare will only provide powered 
wheelchairs which suit the person's needs inside his/her home.  The phrase "in 
the home" was never intended to be defined as "inside the person's house."  It 
was originally intended to mean "not in a hospital, extended care facility or 
other health institution."  It was the CMS that interpretted it so narrowly 
that it has become their mantra when dissallowing power wheelchair requests.

    I am a double amputee quadriplegic and use a powered wheelchair.  To say 
that this mandate appalls me is an understatement.  Most powered wheelchairs 
that are only suited for indoor use are next to useless outside of the home.  
Since going outside at some times is a necessary activity, doing so in an 
underpowered chair only suited for indoor use would be dangerous, it might end 
up costing Medicare far more money due to accidents caused by unsafe use of 
such wheelchairs.  Not to mention possible lawsuits that would eventually be 
filed.  Then there are the thousands of jobs that could be lost because 
wheelchair manufacturers and distributors would be put out of business, 
resulting in lost tax revenue and higher unemployment expenses.
     
    Does Medicare really want disabled people to stay inside all of the time?  
Isn't that discrimination against people with disabilities and, therefore, in 
violation of the Americans with Disabilities Act (ADA)?  Are we not allowed to 
venture outside for doctor appointments (something required to remain living in 
many cases), grocery shopping (another activity necessary to live), or just to 
enjoy going outside for a social activity (a vital activity for our mental 
health)?  Are we to be condemned to a life inside our homes as if we were 
hermits?
     
    Back in the 1980's, I was on several committees at my college that helped 
write the ADA and was proud to have been asked to participate in drafting that 
landmark legislation.  I had no idea that in the future the federal government 
would be the entity that violated that act.  It is unconscionable that a 
government agency that provides healthcare availability to the disabled would 
attempt to so blatantly violate an act of Congress.
     
    I'm requesting that this extreme restriction on the type of powered 
wheelchairs we can obtain through Medicare be changed.  Being disabled and on 
Medicare should not mean we are relegated to being "out of sight, out of mind" 
as it seems this agency (Medicare) desires.  I am only 56 years old and am not 
going to stay indoors the remainder of my life.  This "wheelchair edict," as I 
call it, is far too limiting and needs to be changed.  That change needs to be 
made as soon as humanly possible.

    In an effort to extend Medicare coverage to wheelchairs that can go outside 
of the home, Senator Jeff Bingaman (D-NM) introduced the Medicare Independent 
Living Act of 2006 (S. 3677). This legislation would eliminate the "in the 
home" restriction of mobility devices for individuals with expected long-term 
needs. S. 3677 was referred to the Senate Committee on Finance. Unfortunately, 
due to time constraints and the large amount of legislation which came before 
Congress, this legislation was unable to receive further consideration before 
the end of the 109th Congress. Please see that Mr. Bingaman's proposed 
legislation is reintroduced to the 110th Congress.
     
    This is of utmost importance as it affects both the physical and mental 
health of all persons needing powered wheelchairs.  Please allow our doctors, 
Physical Therapists, Occupational Therapists and wheelchair seating specialists 
determine which wheelchairs best suit our needs as far as comfort, power, 
safety and health are concerned.  Don't leave our ability to be mobile, safe 
and comfortable in the hands of a Medicare or Medicaid bureaucrat.  People with 
disabilities struggle with many things.  Don't make them struggle to just move 
around.
     
     
    Respectfully,
    William Jenkins


      ----- Original Message ----- 
      From: [EMAIL PROTECTED] 
      To: [email protected] 
      Sent: Wednesday, January 24, 2007 10:18 PM
      Subject: [QUAD-L] New 2006 medicare wheelchair codes


       No sense in getting upset about new wheelchairs. We aren't allowed by 
medicare to have a wheelchair that goes outside. If y'all get a chance to read 
the new codes you may want to write some letters. It seems we must be taking 
all the cool parking places.

      http://www.wheelchairjunkie.com/2006pwcpolicy.html

      john

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