When I incurred the spinal cord injury there was no head trauma. In fact I
was aware and pretty pain free through the whole event. I fell from a tree
when I was 16 and kind of landed on me shoulders. Sadly, and its a long
story I won't get into here, my body wasn't handled correctly and most of
the damage likely occurred between the injury and the hospital. It is 20
years later now and I am 36.
From my preliminary reading into it I am developing an opinion/theory
about what is going on, though its not necessarily the right one. I'm quite
sure that partly this is the effect of aging with a disability. This type
of spasm/body- reaction didn't start happening until recently. My theory
now is that my peripheral nervous system has become inaccurate and too
sensitive from several factors, including lack of stimulation, time, being
so sedentary, etc, that these movements and touches trigger them to alert
my central/autonomic nervous system to react in an overly dramatic way. Its
as if my body is reacting like there is some serious danger when there
really isn't. It is triggered by either touch on my skin or movement of my
legs, caused either by someone moving them or by a spasm.
The main time of the day when my body is prone to reacting like this is in
the early morning, like around 4-6am, just after I've been sleeping all
night. When I wake up I'll usually need to take a few deep breaths or
yawns, and these breaths, and especially the yawns, will trigger a body
spasm, which will then sometimes trigger this painful reaction which
immediately raises my heart rate and pumps blood to my brain. If it happens
more than a few times then I'll have to sit up until my body calms down.
Another thing is that it seems like its worse (more likely to occur) if I
haven't drank enough water and if my body is too cold - and these usually
go together because when I get too cold I tend to not drink enough.
But I am going to continue talking to different doctors about these meds
and what you all have shared with me. Thank you very much. I know that we
all have our challenges to face and overcome and we should all keep
eachother in our hearts and prayers. I know that I will be keeping you, my
quad-family, in my heart and prayers. yours, Dylan
At 11:53 AM 3/25/2007, Elizabeth Treston wrote:
A head trauma or just a spinal cord trauma?
I've ever had a seizure or have heard of a chemical build-up.
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From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Saturday, March 24, 2007 3:26 PM
To: [EMAIL PROTECTED]; [email protected]
Subject: Re: [QUAD-L] Dylan's seizures
My neurologist told me that it is a result of having a trauma, after I had
my first couple seizures. I started my medication after testing and have
never had a seizure since. I take 50 mg Tegratol twice a day. What do
others take? I started medication about two years ago after my few seizures.
Dana
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