Hey Diver,
 
Great Advice rarely needs additional comments.  This definitely  applies in 
your comments, which are excellent.  I need not say more.
Best Wishes
W
 
 
In a message dated 7/19/2007 9:02:03 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

didn't see the post from luke you responded to. I have had a supra pubic  18 
french size for over 10 years. I too am very active and live alone and  can't 
imagine any other way.  I use a leg or belly bag (for shorts or  swimming). 
Then at night I use a 4000 ml bedside bag in order to prevent a  smaller bag 
from backing up and causing disreflexia. 
        A BIG ADVANTAGE to using the large  bag at night is that I can drink 
as much water or whatever during the  night as I want. Also I can go to a 
sporting event, concert, movie,  church or drive a long way without stopping 
for a 
potty break.
        The only disadvantage is that I  have my cathater changed at least 
once each month. Also by having the cath in  my bladder I contantly have a way 
for bacteria to get in my system. I have  found that rinsing the bags 1/3 full 
twice with water and  shaking them hard to clean all the corners and tube. 
Followed buy 1/3 bag of  water and I use a 60ml syringe to add vinegar 1 to 
small 
 bags and 2 to the bedside bag. Which I leave in the bag with the caps on the 
 ends of the tubing, hanging from the towel bar until ready to use  again. 
This has helped reduce UTI's to about one every 90 days. My cath  does bleed 
occasionally, but usually only a small amount, less than a golfball  size spot 
on 
a pad that I sleep on my belly on. Usually a day or two  following the 
change, and then if it gets pulled on hard by clothing or  carelessness by 
providers. Which doesn't happen very often. Another helper is  an elastic leg 
strap 
which holds the cathater in place at the connection of  the bag and cath. near 
my 
crotch, always leaving slack between the  strap and belly. I change my cath. 
once a month every month usually  teachng someone ow to do it. I get my 
supplies delivered every month through  _http://www.byramhealthcare.com/_ 
(http://www.byramhealthcare.com/) .  Every morning and night I have caregivers 
clean 
around the cathater site where  it enters my belly. 1st I have hem take 3 
quares 
of toilet paper and roll it  up about the size of a cigarette to make a circle 
around the tube site on my  belly to stop liquids from spilling. Then we use 
a 1/3 cap of Hydrogen  Peroxide poured around the tube and then a q-tip to 
clean any mucous or  blood. Then 2 drops of Betadine on the hole and triple anti
biotic on a Q-tip  to lubricate around the tube and pull the cathater to 
stretch it slightly and  lube around the tube up about 1/2".
        One last piece of advice is to  learn how to change the cathater 
sterily from the doctor. I would even suggest  video taping the doctor changing 
it 
properly. Then watch it over and over so  you know how to explain to someone 
how to do it if an emergency occurs. I have  caught several nurses not making 
the change properly while talking through  every step before they did it.Twice 
I had a careless caregiver pull it out of  my belly accidentally. And a few 
times the cathater has stopped up inside my  bladder. Requiring me to teach 
anyone with TWO HANDS to deflate the defective  cath. bulb and replace it 
quick. 
As I said I have had my super pubic in  over 3,950 days so it is not a very 
common  occurance.                Good Luck, Jim Rice
""I have a dream that one day soon, all people with physical challenges  will 
be treated equally. I will not let things I am not able to do yet, Stop  what 
the LORD & I can. !!!" 
----- Original Message ----- 



 



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