Dear Stacy,
My only advice is to wash your hands and make sure everyone else does, too. I 
try to keep journals during those marvelous episodes. It would be cool if you 
could talk to people that have aided you and let them know about the VRE. Be 
nice to those you love and dont let them get infected. (Of all the times when 
you wanna be close).
You have a serious bug and it'll do anything it can to get someone else. Do not 
let anyone near you if they use that hand cleanser junk. Make sure they wash 
their hands even more. 
You are probably going to feel a lot weaker.I pray the pain becomes tolerable
Your back has to stay immobile for however long it takes.
When someone in here decides to ask how everyones summer went, you win! 
You have my prayers and best wishes. Stay strong.
My best tip is to rent or borror your favorite movies. I swear I feel better 
when I laugh and I can't think about pain when my mind is elsewhere.

john
P.S. I ramble when I have certain infections but I bet you can't tell.

----- Original Message ----
From: Stacy Harim <[EMAIL PROTECTED]>
To: [email protected]
Sent: Saturday, September 1, 2007 8:52:38 PM
Subject: [QUAD-L] horrific 4 months


Hey all.  What a few months.  I broke my back.  Of all ways, I was transferring 
into my wheelchair.  I didn't fall as one would guess.  I grabbed the wheels to 
pull myself the rest of the way and it snapped at T 11. For those of you who 
don't know I got encephalomyelitis 6 yrs ago and left damage at T7.   It hurt 
like hell even though it was below my level.   I was shipped to Hopkins and had 
a rod put in my back.  It turned out that I had osteomyelitis in my spinal 
column.  A month later a cat scan revealed that he didn't get it all.  Another 
rod and another cage in the lumbar area on top of nerves being snipped.  
Finally another surgery on my bday of all days July 3 to remove a screw that 
was too close to my aorta.  The neurosurgeon feared erosion and it would come 
loose.
 
I went ahead and had surgery on the pressure sore AGAIN!  I had spoke with a 
reconstructive surgeon at Hopkins a few weeks before I snapped my back.  I had 
several tests done that revealed that there was an underlying problem with the 
bone so I had some of it removed. I combined the last surgery. It should have 
healed in only a few weeks because he used triple stitching in layers.  The 
skin healed but came apart again.  I had to go back to Hopkins from rehab and 
ended up getting another surgery.  He said that he didn't even see the 
dissolving stitches that should have lasted a few months.  Now I'm home and on 
bed rest.  It's been a month.  He took the stitches out and there is still some 
drainage that he knows about but the pain can be extreme.  I know I will end up 
calling him next week.
 
I have definatly gone backwards.  I have lost my balance,  used to be able to 
sit up in bed, and I have lost my transfer ability that I got back slightly.  I 
also have lost all stregnth that I am not allowed to work on until my spinal 
restrictions are lifted.  On top of it all, I found out that I carry VRE in my 
wound.  I am not sure if its in my intestines or not but my bowels started 
messing up since about a week after my last surgery.  I'm not sure its the VRE 
or the zyvox I'm taking.  I havent had it in a few days so I wonder why they 
are acting up.  I'm taking iron twice a day and that isnt even slowing them 
down.  Does anyone know about this?  I'm going to the doctors next week but 
there isn't information like a fellow person that has been through it.
 
Any help would be appreciated,
Stacy



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