I have been out with my own UTI for some time and am just getting a chance to respond to some of the e-mails. I hope you're able to get over this UTI pretty quickly. I agree with Lori that you need to look for another position ASAP. A doctor that waits that long to respond to something as serious as what you have is either incompetent or seriously negligent.
Take care and hopefully you will be able to go on your vacation. Quadius On 10/3/07, Danny Hearn <[EMAIL PROTECTED]> wrote: > > HI, LorI, Yes we have had a lot of uti problems last few years. While > you were off the list or unable to respond---I wrote about how I also had > my 1st bladder stone removed just this past Febuary, it was large about a > golf ball size, So I don't know what is causing my infections now...I was > hoping after that things would go well for a long time. The Lab my insurance > uses is INCOMPETENT ! always throwing my culture out saying ( more than 1 > organism ) So last week I made them write MUST TEST FOR ALL > ORGANISM"S...because I have a supra pubic catheter and ALWAYS have more than > 1 . This time they did it correct and found out yesterday it is > Pseudamonas......I called 1st thing this morn but still have not heard from > my Urologist as to what to do? The other 2 times in years past he told me > wait and see what happens, and both times I was rushed to the emergency > with Autonomic Dysreflexia feeling like I was gonna die.......Also my > bloodstream was infected and my white blood cells were almost gone, I was so > weak I could hardly sit up. I'm so confused NOW--I don't know if I should > wait or if It can possibly get better OR will the past repeat.? We changed > my catheter today and flushed with acetic acid......my wife stayed home from > work to help do all this. To tpo it all off---We had a vacation to Branson > Mo, planned with family members for 4 day's the 20th to 24th of this month! > My wife and other family had this scheduled for a year...I sure hope I don't > cause it to be messed up. Oh well such is life...I hope this will work out > soon. Take care and thanks for all the advice from all you on the > list.! Dan H. > > *Lori Michaelson <[EMAIL PROTECTED]>* wrote: > > > Hi Danny, > > You and I have been talking (around 2 years now?) about the chronic UTIs > that we both have > been plagued with. But it seems like you have not had very good luck with > competent doctors. > *Neither have I *but I finally found out that "the culprit" were those > very big, big bladder stones > that had been sitting in growing in my bladder *for years and kept > growing.* > Anyway, you said that you have had a bad UTI for a month now! If it is > "bad" then I must assume > it has gone systemic and you have been running a fever with severe chills > for a whole month? > Something does not sound right. Not to mention being extremely > dangerous!!! In other words... > what the F***? have you or the doctors than waiting on/for? After a whole > month... you just > got urine culture results today which only take three days (on the > outside)? > > Just before, and after, having my bladder stones removed a year ago this > past May... > the bug that came after me twice in 2 months was Pseudomonas. It is one > of the worst ones and both times > I had to be treated with IV antibiotics via a PICC line at home. > Again, you and I have discussed these ongoing UTIs both on list and off > list. There must > be some source, or culprit, causing your chronic infections. Mine was > bladder stones > but it has to be a process of elimination kind of deal. And only you know > your body best! > You already know that I have had repeated serious UTIs such as > Pseudomonas. > Yes, it is very depressing not to mention life-threatening. And going > through an entire month > ... how in the world did you let it go that long if it WAS so BAD? My > fevers that bad really quick > and I thought I would die before ibuprofen in some sort of antibiotic > began kicking in. > Then finding out that Pseudomonas has been growing in there the whole > time? I would > began to think that your urologist OR even your regular physician... sits > around reading > comic books rather than trying to help you! > As far as how many times one can use the IV drugs before the bug gets > resistant to them > it is really academic if you NEED them anyway. My greatest fear with all > my troubles ALSO > was the fear that the bugs were growing more and more resistant. After > all... > when you have to resort to IV antibiotics... that is scary enough! There > is nothing left to resort to. > This is what leads me to think that your position does not give a rat's > ass about your well-being. > How you describe it... this is dead serious and something not to just > brush off again and again. > > Also, like I have told you so many times... you might need to travel to > get a better urologist > and one really cares about your well-being! This quack that you keep > going to has not > been very helpful... has he? Therefore, because these things can get > quite serious... > you better get real proactive real fast. If I sound like I am yelling at > you or preaching > to you... maybe it is because that I care more about you than your doctor > does! Tough love > if you want to call it that. :-) > I was so upset when I got a Pseudomonas infection AFTER having my bladder > stones out > and my doctor was not happy either. *I* finally found the answer on the > Internet. To be brief... > I found out that by me eating a banana a day... that amount of potassium > was severely > altering the pH of my urine. It was staying too alkaline (7.5 or more) > when it should be > much more acidic to keep the bugs away (ideally a pH of 6). > After I stopped eating bananas... wala! I have not had an infection > since! Who would have > ever thought? My doctor was unsure why we could not get my pH number > lower even by > taking cranberry capsules, drinking cranberry juice and other acidic > juices. > She (my Urologist) was pretty impressed that I was able to find out the > information that I did. My body > was not going to be able to take many more infections and the bugs were > just getting stronger > and stronger and that would ultimately lead to my demise. > That is the second time the Internet information has saved my life. > Anyway, Danny... please heed my advice to go get a damn new doctor! Also, > have your > pH checked if you have not already. If your urologist is competent, as > well as the > medical technicians who tested your urine, they should be able to provide > you > with what your last pH was during the culture. Just call and ask because > it is usually part of the lab report. > If not... insist on finding out even if you have to give them a new > specimen and ask for that specifically. > Good luck buddy! > Lori Michaelson > C4/5 complete quad, 27 years post > Tucson, AZ > > > > > On 10/2/07, Danny Hearn <[EMAIL PROTECTED]> wrote: > > > > *Hi all.......I have had a bad UTI for a month now, I just got the > > results of a Urine Culture today, and they told me I have psuedamonas > > bacteria infection and are going to contact my Urologist because only > > I.V . drugs can fight it. Since i've had a supra-pubic catheter put in 7 > > years ago --- this is the ( 3rd ) time i've had this type bacteria, that > > will probably require I.V. drugs once again. It is very depressing, Has > > anyone else had repeated serious UTI's such as Psuedamonas??? We are > > wondering how many times one can use the I.V. drugs for this before > > getting resistant to them.......I don't know what options there are..I will > > ask my Uro Doctor but he seems to not know a lot on the subject. > > Thanks, Dan H.* > > > > > > >
