So sorry about your syrinx Ron and Lori and anyone else who has on the list. I thought I had one for a number of years but found out it was scar tissue instead. I went to a conference of the group and Lori was talking about and what she said most of them are different kind of syrinx thenspinal cord injury persons have, but the conferences are very useful if you ever have one that comes to your city. I think the travel to different cities each time. He really have a great support network in their organization. There may be a few people with spinal injury in the group. Thinking of you that are going through this. I met some persons at Craig, where mine was diagnosed , one had been a walking quad and was quite a high level after syrinx. It really made me afraid .
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