I know a lot of you have to Deal with a syrinix. My question is this. Is there any relief? Have any of you had sucess with draining it or with surgery? Does it always come back? There has to be something that can be done.
Silas Shelburne <[EMAIL PROTECTED]> wrote: Lori, Reading your post sounds just like what Im experiencing, I have a syrinx that may be causing the pain. I have a appointment with a nuro surgeon in February, but dam I dont know if I can stand the pain till then. It was after 3 before I finally went to sleep, what do you take that helps? Thanks Silas From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Saturday, January 05, 2008 6:31 PM To: Silas Shelburne; quad-list@eskimo.com Subject: Re: [QUAD-L] Neck! Like Billy ... I have something very similar to what you describe. It began in 1997 at the lower part of my neck. Pain but no numbness. The muscles in my neck have always been very strong since my injury in 1979/1980 because I have to use them to help hold me up, etc.. My neck was fused from C2-C7 ... I guess the surgeon at the time really, really, really wanted to make sure that my neck was stable! It sure is -- but NOW at an expense. My husband teases me that my neck bone is connected to my butt bone! LOL All kidding aside because this affects me every day now. My neck fusion is what does not allow me to turn my head to the left or the right very far at all. This was never a problem for the first 17 years after my injury. I would have thought after all of those years of depending upon those muscles (neck, lower neck, spine and shoulders) that I would have some sort of pain or problems LONG before 1997 but nope. I was then diagnosed in September of 1994 with Syringomyelia and had surgery. However, I had none of the pains anywhere until two years after the surgery! But the pain is pretty much where my spine is and where the shunt is located... my lung cavity. Which is also where the trapezius muscle is that is aggravated if I overuse it. So it is like it is all tied in together at my expense. The ONLY thing that had changed in my life was that my EX wanted to split up and I ended up moving into an assisted living facility. I was no longer transferring or moving the way I had been for many years. ALTHOUGH... absolutely nothing was hurting me when I was transferring or getting moved. So, by process of a limitation, and since it started right then... I must assume that my body was getting moved in a way that my upper neck and spine and all the areas mentioned above DISLIKED whatever was happening different and even now I am very careful now until this day... there is no going back. Things have only worsened. Although Syringomyelia is a condition that either stays stable or gets worse. Like you... turning my head left or right makes everything much, much worse! My MRIs show that everything is OK. And the last comment that I got from a doctor seems to sum it up the best. He said that the shunt is probably woven through muscles and nerves and is now causing pain. I will not be going to have my spine manipulated again by any surgeon. Every time I have done that... I have come close to death. I have tried just about every narcotic out there as well as relaxation, tens units, and so much more without relief. Massaging or even touching area harder than a light touch ... exacerbates everything for the worse. I have had to just learn to deal with it and some days are much better than others. But the last three weeks have been terrible. Whenever I exert myself I think it causes my spinal fluid to be aggravated by pressure. I am not even able to blow my nose because that hurts everything for weeks afterward. Foolishly... I was imitating my husband snoring in the middle of the night about three weeks ago and that is when it began. That sounds funny I know but I have been in so much pain SINCE... that it is not funny and will teach me to NOT try to do something that I know I should not! Or that will bite me in the end. I just get so damned mad at my body for being so hypersensitive! It's beyond the ridiculous end of the spectrum. Lori Michaelson C4/5 complete quad, 28 years post Tucson, AZ On Jan 4, 2008 1:36 AM, Silas Shelburne <[EMAIL PROTECTED]> wrote: Hi everybody, I'm having terrible neck shoulder and arm pain and numbness, the mussels in my neck are so stiff and sore I can't hardly turn my head. It's worse in bed when I turn my head, it's like the neck muscles are knotted up and won't turn loose. Anybody else had this problem and what did you do. Thanks Silas -- Lori C4/5 complete quad, 27 years post Tucson, AZ --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.